by Gilles Frydman | May 18, 2009
Comparative Effectiveness: a comparison of the impact of different options that are available for treating a given medical condition for a particular set of patients. Such studies may compare similar treatments, such as competing drugs, or they may analyze very...
by e-Patient Dave | May 15, 2009
Blogger John at the “EMR (EHR) and HIPAA” blog posted a musing that caused my business antennas to twitch. A vigorous discussion has started in the comments. Here’s the thing: we’re talking about the billions of incentives we’re offering...
by e-Patient Dave | May 13, 2009
Precursor posts: The “meaningful use” debate (my thoughts); the Markle Foundation’s work on the subject Thanks to Josh Seidman of the Information Therapy Blog for steering me to the “meaningful use” work that’s been done by the...
by Gilles Frydman | May 12, 2009
Magical thinking: the ability to draw conclusions that are based on a person’s desire for what reality should be, not necessarily upon what reality actually is. Cargo Cult HIT: Concepts in HIT that follow all the apparent precepts and forms of evidence-based...
by Sarah Greene | May 11, 2009
My son graduated from college last year and is now in Nepal, visiting schools and writing about rural education under the Maoist regime. He was excited to tell me, when I visited him recently in India, about how a classic book on education, Pedagogy of the Oppressed...
by e-Patient Dave | May 10, 2009
Last night I posted my own thoughts on the definition of “meaningful use,” a term that will have significant impact on our next-generation medical records systems. To me it’s vital that the term be defined to include full access for you and me...
by e-Patient Dave | May 10, 2009
I’ve struggled with what to say about this subject for two weeks, because I want to “get it right” but it’s vast. So I’m giving up any hope of being comprehensive, and I’m just going to say what little I know, and what I think, and...
by Gilles Frydman | May 6, 2009
Clinicians, the Government, and many other groups are working hard to improve health care quality, but it’s a team effort. You can improve your care and the care of your loved ones by taking an active role in your health care. Ask questions. Understand your...
by Susannah Fox | May 5, 2009
Update on 12/3/14: Nature re-ignited the access debate when they announced that they will make all their articles “free to view” (but if you read the fine print: it makes the “dark social” practice of #icanhazpdf and other access work-arounds...
by Gilles Frydman | Apr 20, 2009
Neither health professionals nor patients can do it alone. Let’s make no mistake: We are here to participate and to help! e-Patient Dave original story of the health data transfer from his hospital EHR to Google Health PHR is remarkable in many ways and shows...
by e-Patient Dave | Apr 18, 2009
Today’s Boston Globe reports Beth Israel halts sending insurance data to Google. I commented: I’m the patient in question. In her original piece 4/13, Globe writer Lisa Wangsness did a terrific job of accurately capturing both the details of this complex...
by John M. Grohol, Psy.D. | Apr 6, 2009
I sometimes wonder whether we complicate things that are pretty simple, by assigning more labels and new terms to things that have perfectly good labels already. For instance, I once thought I knew what “information therapy” meant. It meant a doctor or...
by e-Patient Dave | Apr 1, 2009
This is a complex post, so don’t jump to any conclusions. Two weeks ago (gad, was it that long?) I asked you to think about something for a few days: Imagine that for all your life, and your parents’ lives, your money had been managed by other people who had extensive...
by e-Patient Dave | Mar 30, 2009
IBM’s “Smarter Planet” blog has picked up e-Patient Dave’s post A Thousand Points of Pain, about how enmeshed and entangled our healthcare system has become, and the implications for people who want to design a transformed system. Dave added a...
by Sarah Greene | Mar 15, 2009
The wonderfully helpful NYTimes series Patient Money reported Friday on the topic of Opaque Inc., as posted recently here by Gilles. The article, Bargaining Down the Medical Bills, gives practical advice about how to negotiate your doctor, lab, and hospital fees. The...
by e-Patient Dave | Mar 15, 2009
We’ve been talking here (especially about Medpedia) about the vital question of what constitutes reliable information. This morning I ran across a bit of idiocy on YouTube (you’re shocked, I know) regarding my own type of cancer, titled “Two New...
by e-Patient Dave | Mar 12, 2009
We’ve been known to have our minds blown, but this one started as an eye-popper and got better. A friend writes: “Even the DoD is getting in the act: Patients urged to take charge of their care.” But holy cow, there was a LOT more behind that...
by e-Patient Dave | Mar 4, 2009
At the Connected Health conference in Boston last year, where I spoke with my physician Danny Sands, I heard the visionary Clay Shirky speak. He gets it in spades about patient empowerment. In passing, he cited one of the most absurd ideas I’ve ever heard :–)...
by e-Patient Dave | Feb 21, 2009
At the 25th annual TEPR+ conference in Palm Springs on Feb. 2, Alan Greene (DrGreene.com) gave the opening address. It was inspiring – I wish we had a video of it. Too bad so many attendees opted to skip the keynotes and fly into town late! Like, did you guys think...
by e-Patient Dave | Jan 18, 2009
This topic isn’t directly in our wheelhouse here in the e-patient movement (“empowered, engaged, equipped and enabled”), but as I continue one patient’s odyssey in learning about healthcare, a discussion on Paul Levy’s blog has taught me...
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