by Susannah Fox | Jul 19, 2011
Just in case anyone is curious: my notes from Health Foo, a meeting held last weekend in Cambridge, MA. It’s long, so skim for the 9 lessons if you want a shortcut. What: Foo Camp is an unconference, constructed on the spot by the people who show up, with just a...
by Susannah Fox | Jul 1, 2011
I admit it: I’m not a gamer. But I am competitive. Plus I love micro-fitness challenges and I’ve read (and believe the lessons of) The Decision Tree. So when Jen McCabe described Health Month, I was intrigued. It’s a game in which you choose the...
by e-Patient Dave | Jun 30, 2011
Strictly speaking this isn’t about participatory medicine, but it is about being an empowered consumer of care. There are several dimensions to empowerment, including (but not limited to): Knowing what you want Recognizing whether you’re getting it When...
by e-Patient Dave | Apr 6, 2011
The BMJ (British Medical Journal) has posted a three-part downloadable podcast about the Salzburg Statement. Part 1: History and current status of shared decision making. [26:04] Part 2: Vision of the future, and barriers to getting there. [23:31] Part 3: Informed...
by Susannah Fox | Mar 24, 2011
On March 11, the White House hosted an event to mark National Women and Girls HIV/AIDS Awareness Day. The event was livestreamed from whitehouse.gov and is archived on YouTube: I have written before about the unique nature of conferences concerning...
by Susannah Fox | Mar 23, 2011
Updated on 3/24/2011: I recently met the director of a community health organization A. Toni Young, founder and executive director of the Community Education Group here in Washington, DC. She has big dreams for harnessing the power of her clients’ health data...
by e-Patient Dave | Mar 16, 2011
Guest post by SPM member Regina Holliday. Perhaps because my world-view is shaped by the escapades and explanations of active little boys, I often speak of super-heroes in relation to health care. I listen daily to tales of poisonous spider bites, DNA mutations and...
by e-Patient Dave | Mar 1, 2011
Noted patient activist Dale Ann Micalizzi, founder of Justin’s HOPE (blog), has just been named co-chair of the 2011 Forum of the Institute of Healthcare Improvement (IHI). The IHI Forum is a major international healthcare event, with over 5,000 people attending...
by e-Patient Dave | Feb 23, 2011
ABCNews.com has posted a great new piece by Roni Zeiger MD, “The Biggest Wasted Resource in Health Care? You.” Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It’s well reasoned and clearly written, and continues the...
by e-Patient Dave | Feb 18, 2011
The Institute for Healthcare Improvement (IHI) has generously released the session video of the keynote that SPM president Dr. Danny Sands and I delivered at the IHI’s annual Forum in December. At this event the IHI did two extraordinary patient-oriented things:...
by e-Patient Dave | Jan 22, 2011
I have a Google Alert for “e-patient,” and sometimes I’m surprised what it catches. Tonight it was this: 3 Reasons Steve Jobs Will Be The Ultimate e-Patient Steve Jobs’ medical leave sets the stage for the upcoming revolution in the production...
by e-Patient Dave | Jan 20, 2011
Thanks to friends Kavita Patel and Brian Ahier for pointing out this sign of shifting winds, in yesterday’s Time online:Â Googling Symptoms Helps Patients and Doctors. It’s a watershed moment, because the last physician column I saw on this was the...
by e-Patient Dave | Jan 3, 2011
For those who believe in the power of facts, some wonderful news from CMIO, 12/15/10: “Six of the nation’s leading healthcare systems — Cleveland Clinic, Dartmouth-Hitchcock, Denver Health, Geisinger Health System, Intermountain Healthcare and Mayo Clinic...
by Susannah Fox | Dec 10, 2010
The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so...
by e-Patient Dave | Nov 13, 2010
John Moore of Chilmark Research has another great post, this time on the realities being discovered about PHR use among the urban poor – something most observers considered unlikely. It’s aptly titled Smashing Myths & Assumptions: PHR for Urban...
by e-Patient Dave | Nov 4, 2010
Josh Seidman is in charge of Meaningful Use at the Department of Health and Human Services. (Meaningful Use refers to the guidelines for how providers should use electronic medical records.)Â He wants input from us – that’s you: ONC is eager to get as much...
by e-Patient Dave | Oct 28, 2010
We talk a lot here about taking, owning, or reclaiming responsibility for our health and its care. If we ever update the e-patient white paper I want to include an area where we’re sometimes robbed of control at the most intimate time: death, and the months and...
by e-Patient Dave | Oct 23, 2010
Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who’s illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which...
by e-Patient Dave | Oct 6, 2010
Later this month something’s coming that I have a suspicion will be wonderful. Carlos Rizo of Toronto’s Health Strategy Innovation Cell tipped me off to this October 20 webcast: The Ontario Hospital Association (OHA) and the Health Strategy Innovation Cell...
by e-Patient Dave | Oct 2, 2010
Elizabeth Cohen is surely the most visible spokesperson for patient empowerment, because she’s on CNN and CNN.com. She’s got an hour-long special on CNN this weekend. Highly recommended, especially for friends and family who don’t get what this is...
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