by Susannah Fox | Sep 27, 2010
Last week’s Mayo Transform symposium was a two-day excursion into the world of science, data, design, and the secret ingredient to health: love. Patch Adams, MD, kicked things off in grand style. If you’ve never seen him speak, treat yourself to a hit of...
by e-Patient Dave | Sep 2, 2010
At last weekend’s MITSS patient safety workshop, some of us remarked out loud that it would be great to have a simple video teaching newly admitted hospital patients the importance of hand washing, and even showing them how to speak up to a staff person who...
by e-Patient Dave | Aug 28, 2010
Today I’m participating in a workshop, “Engaging Minority Communities in Safer Healthcare,” organized by MITSS (Medically Induced Trauma Support Services), a Boston non-profit I’ve written about before. The current speaker is Lisa...
by e-Patient Dave | Aug 19, 2010
Well, here’s a treat: Dr. Charles Smith, a founder of the Society for Participatory Medicine, recently gave a lecture at Duke titled “How to Become a More Effective e-Patient.” Here it is, in four YouTube segments. “Charlie,” as we all...
by e-Patient Dave | Aug 7, 2010
Last night I got word of an unexpected treat: an hour-long conversation between some real experts about participatory medicine. It’s on Andrew Schorr’s Patient Power site – he and his team are powerhouses as well, and they produced a special...
by e-Patient Dave | Aug 3, 2010
Next in our “Why I Joined” series is Victor Montori, MD of the Mayo Clinic. My wife and I met him in May; he’s high energy, with boundless optimism. And as you’ll see, he feels very strongly about patients being at the center of healthcare. The...
by e-Patient Dave | Aug 3, 2010
Our Susannah Fox (and her research) are quoted in a piece yesterday on PBS Newshour’s online edition about the HealthCare.gov insurance research site. There’s also a small quote from me.
by e-Patient Dave | Jul 25, 2010
Next in our series, Mark Boguski, MD, PhD is both a personal and a corporate member, as co-founder with Dr. Alan Littleford of ResoundingHealth. If you’d like to submit your own reason, write to me. (This is not an “invitation only” series –...
by e-Patient Dave | Jul 21, 2010
I ran across a graphic today that warmed my heart: Recognize that agenda? (Click to enlarge if you want more clarity.) Sure is a lot of what we’ve discussed. Pie in the sky, tough hill to climb, nice idea but not feasible, right? Wrong. Thursday I’m at a...
by e-Patient Dave | Jul 20, 2010
Gary Wolf of Wired has posted a whizbang write-up that came out of a whirlwind one-hour 12-way Skype chat about personal health data. Sound frenetic? It was. (I participated. It was, well, 12-way.) I can’t imagine how to model what happened, except to say that...
by e-Patient Dave | Jul 15, 2010
Josh Seidman, Director of Meaningful Use, sent this. It’s for a two year full time job in DC, possibly extendable. No relocation costs will be paid – you’re on yer own. :–) From what I hear, talking to people working in HHS these days, “full...
by e-Patient Dave | Jul 7, 2010
Did you know that a major aspect of the Affordable Care Act (aka the health reform legislation) was significant funding to revamp primary care? I’m embarrassed to say I didn’t. There’s $10 billion (with a B) in funding for research in the first ten...
by e-Patient Dave | Jul 2, 2010
This week the Department of Health & Human Services (HHS) introduced Healthcare.gov, a consumer information website mandated by the Affordable Care Act (aka the health reform bill). A video of the introduction meeting is here. The site is fabulous; HHS Chief...
by e-Patient Dave | Jun 12, 2010
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar – Kramer...
by e-Patient Dave | Jun 7, 2010
Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly...
by e-Patient Dave | Jun 6, 2010
A big deal happened in Washington Wednesday – something I barely knew was happening: The Community Health Data Initiative (CHDI) was announced at the Institute of Medicine. It’s exciting to me, because at long last we’re getting the chance to let...
by e-Patient Dave | May 18, 2010
Through the magic of Google Alerts, Diane Engelman recently learned of this blog. She’s one heck of an e-patient, though until now she’d never heard the word. That proves patient empowerment is a real trend, driven by a powerful force: the desire to help...
by e-Patient Dave | May 16, 2010
The front page of Friday’s Minneapolis Star Tribune has coverage of the keynote address I was privileged to deliver on May 5 at the 13th Annual Colloquium of ICSI (Institute for Clinical Systems Improvement) and IHI (Institute for Healthcare Improvement). The...
by Susannah Fox | May 1, 2010
“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to...
by e-Patient Dave | Apr 28, 2010
The e-Caremanagement blog has released my post that we mentioned last week: “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation. It’s part 5 of their excellent series (really, excellent) “Is HITECH working?” As...
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