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A first: Participatory Medicine thinking in the Harvard Business Review

by e-Patient Dave | Nov 21, 2016

As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we’ve been advocating since 2009: Participatory Medicine is a model of cooperative health care that...

NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?

by e-Patient Dave | Nov 11, 2016

This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s...

OpenNotes hits TEN MILLION patient level

by e-Patient Dave | Aug 9, 2016

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the...

e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal

by e-Patient Dave | Aug 8, 2016

We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean...

Cleo Kordomenos: How My Opinion on Online Health Communities Changed

by Ileana Balcu | Aug 1, 2016

This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey...

“Unmarried teens would jump off bridges”: NY Times on suppression of home tests

by e-Patient Dave | Jul 31, 2016

A large part of the Society for Participatory Medicine’s work is culture change, and that requires pointing to the cultural roots of today’s situation, so that well-meaning people today can understand how we got here, and how absurd today will look in the...