by e-Patient Dave | Jun 19, 2018
I know there are numerous initiatives along these lines so please circulate this widely. Help publicize and share what others are doing to incorporate patient perspectives in the present and future of healthcare! I’ve received the following request from Luke...
by e-Patient Dave | Jun 13, 2018
Email subscribers, I’m not sure the video below will come through to you – if it doesn’t, click the headline to come see it online. http://www.wtnh.com/ct-style/the-better-health-conference-helping-to-change-healthcare-as-we-know-it/1236774613 Last...
by e-Patient Dave | Apr 13, 2018
Longtime SPM member Danny van Leeuwen (@HealthHats) is seeking nomination and support as a “patient/caregiver stakeholder” seat on the Board of Governors of PCORI, the Patient-Centered Outcomes Research Institute, about which we’ve blogged often...
by e-Patient Dave | Mar 6, 2018
UPDATE FOR ATTENDEES: Try to arrive 10 minutes early — 10:50 am — to get oriented. On arrival a host will scan your badge and point you to the big round “Discovery desk” where we’ll gather. We’ll talk a bit for 10 minutes, then...
by e-Patient Dave | Jan 17, 2018
This is a long overdue post of the next session from our Society’s first conference on October 25. The first keynote, about OpenNotes, was posted here, including this note: WOW was our Society’s first conference on October 25 a breakthrough event! Titled...
by e-Patient Dave | Dec 20, 2017
No surprise to e-patients: a new study in the journal Surgery found that when patients facing a liver transplant connected with each other, they liked it. Read the article about it in MobiHealthNews or the original paper, if you can get it. Here’s an extract...
by e-Patient Dave | Nov 29, 2017
I’m way late in blogging this – too much travel and jet lag – but WOW was our Society’s first conference on October 25 a breakthrough event! Titled ““Participatory Medicine: Transforming the Culture of Care” (web page), it produced...
by e-Patient Dave | Nov 27, 2017
Why the Movement Needs a Breakthrough, and How You Can Help Guest post by SPM member Tyson Ortiz (right), a highly committed member of SPM who works in organizational culture change. His previous post, How I became an e-patient: through practice, with coaching (using...
by e-Patient Dave | Nov 16, 2017
The image above is from the blog post described below. SPM board member-at-large Peter Elias MD is a recently retired family physician who says he’s always practiced participatory medicine, long before he knew it had a name. He’s contributing a terrific...
by Michael Millenson | Nov 15, 2017
Baseball, like medicine, is deeply imbued with a sense of tradition, and no team more so than the New York Yankees, disdainful of innovations like placing players’ names on the backs of their jerseys and resistant to eroding strict standards related to haircuts and...
by e-Patient Dave | Sep 22, 2017
This may be the best short talk ever about the importance of participatory medicine. SPM’s past president Sarah Krüg (@SaraKrug1) recently did a 10 minute TEDx Talk in Brussels. It’s one of those rare ones that’s pretty riveting. Watch it. Join us. Our Society for...
by e-Patient Dave | Aug 7, 2017
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about...
by e-Patient Dave | Aug 3, 2017
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,...
by e-Patient Dave | Jun 21, 2017
As his TEDMED profile says, Dr. Isaac (Zak) Kohane, MD, PhD, co-directs the Center for Biomedical Informatics at Harvard Medical School. He’s a long-time believer in the power of well managed information to help create well managed care. Many members of SPM got...
by Ileana Balcu | Jun 19, 2017
Lawrence “Larry” Weed (born December 1923, died June 3, 2017) was an American physician, researcher, educator, entrepreneur, and author, who is best known for creating the problem-oriented medical record as well as one of the first electronic health records....
by Ileana Balcu | Jun 8, 2017
Eric Topol published a Commentary on Medscape describing a study published in JAMA in which cancer patients that tracked 12 symptoms and shared the tracking results with their health teams had a five months increase in survival equivalent with some of the most...
by e-Patient Dave | Jun 7, 2017
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...
by Ileana Balcu | May 16, 2017
This is a guest blog post by Allie Davanzo. Allie was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Allie Davanzo is a sophomore Public Health major at The College of New Jersey who hopes to...
by e-Patient Dave | May 2, 2017
This post by SPM member MaryAnne Sterling is a thrilling sequel to our ongoing posts about CCCC (an organizational member of our Society) and its support for e-patients at their annual summit. MaryAnne is CEO of Sterling Health IT Consulting. She’s a healthcare...
by e-Patient Dave | Apr 7, 2017
We’ve written often here about the BMJ’s leadership on not just listening to patients but looking at healthcare from the patient’s perspective. Their patient partnership campaign, launched in 2014, includes a patient advisory panel that works...
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