by Ileana Balcu | Apr 14, 2014
4 minutes video in which Dr. Steven Weinberger describes why it is important to include patients in creating guidelines and decision-making processes. New ACP center will foster physician-patient collaboration : Internal Medicine News. (requires registration. I just...
by Ileana Balcu | Apr 3, 2014
By Mark Branning and Brad Tritle Mark Branning is Principal at mdb Healthcare IT Solutions, Adjunct Professor at National University, a member of the HIMSS Connected Patient Committee and co-chair of the Connected Patient Community. Mr. Branning has spent 33 years...
by Ileana Balcu | Apr 2, 2014
Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s...
by e-Patient Dave | Mar 27, 2014
The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don’t you love the logo? Turning the clinic on its ear?) It’s utterly engaging and empowering...
by e-Patient Dave | Mar 26, 2014
Last week SPM member Erin Moore (see her previous posts) handled an opportunity in Washington really effectively, and she got heard. Here’s a cross-post of her news, with permission, from her blog 66 Roses. ______________ Last week I traveled to Washington, DC...
by e-Patient Dave | Mar 5, 2014
Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may...
by e-Patient Dave | Mar 5, 2014
Care designers and fans of patient-centered care, listen up: a hat tip to Danish friend Malene Louise Djurhuus Laubinger for this, from The Guardian: How collaborating with patients improves hospital care. We’ve often said on this blog that participatory...
by e-Patient Dave | Feb 11, 2014
Edited an hour later – I had the wrong French speaking e-patient! On Facebook today Christine Bienvenu @TinaBurger posted this news on my timeline: … with the help of a Swiss colleague who works at the Geneva University Hospitals we were able to get the...
by e-Patient Dave | Jan 21, 2014
For U.S. residents – I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challenge for shopping...
by e-Patient Dave | Dec 19, 2013
As we’ve said endlessly here (and in Washington), one of the key enablers of better healthcare is access to information. For that subject there’s no more important job in the world than America’s National Coordinator for Health IT, who runs ONC...
by Ileana Balcu | Nov 27, 2013
In this guest blog post, member Beatrice Tiangco describes some of the pain and suffering in the Philippines after the typhoon and expresses her gratitude for the SPM, local community and overall support. Beatrice Tiangco is a practicing Medical Oncologist from the...
by Susannah Fox | Nov 15, 2013
A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you...
by Ileana Balcu | Nov 13, 2013
Below is a guest post by Suzanne Mintz, founder Family Caregiver Advocacy about a summit where patients and caregivers were an integral part of the healthcare redesign process. More and more you will see us featuring meetings and conferences that include patients and...
by Ileana Balcu | Oct 10, 2013
We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care...
by e-Patient Dave | Sep 29, 2013
At the extraordinary Stanford Medicine X conference I connected with SPM member Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who’s deeply interested in and committed to enabling elders and caregivers through patient and family engagement. We recorded...
by e-Patient Dave | Sep 15, 2013
Monday Sept. 16 is the 2013 Consumer Health IT Summit. That means we, the patients, are the focus – we and our data, of course! – along with the providers (doctors, nurses, practices, hospitals) who serve us. You can watch live, online, without prior...
by Ileana Balcu | Sep 13, 2013
Guest blogger Natasha Gajewski participated in the Flip the Clinic meeting at the Robert Wood Johnson Foundation. Below are her observations about the meeting and a thought you might consider. Natasha is an e-Patient and the developer of Symple, a symptom journal for...
by Ileana Balcu | Sep 11, 2013
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...
by e-Patient Dave | Sep 6, 2013
Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when...
by e-Patient Dave | Sep 4, 2013
Updated Sept. 6: I’d forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record...
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