by Alicia Staley | Aug 25, 2013
SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged...
by Ileana Balcu | Aug 16, 2013
Guest blogger Kathy Kastner gives us an overview of the health literacy resources on the Internet. It is an important topic – how can patients be engaged and participatory if they don’t understand what they are told? Kathy Kastner is Blogger and Curator...
by e-Patient Dave | Jul 31, 2013
I’ve just attended John Moore MD’s “defense,” as they call it – his presentation of the results from his PhD thesis project at the M.I.T. Media Lab. The project has participatory medicine written all over it: it’s about Developing...
by Susannah Fox | Jul 19, 2013
Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...
by e-Patient Dave | Feb 24, 2013
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine,...
by e-Patient Dave | Feb 18, 2013
This is the big update to our preview post last November. There’s a stage in a movement where it starts to get serious media coverage, and ours is coming of age. We’ve documented the progress: 2009: Susannah Fox was on NPR’s Morning...
by Ileana Balcu | Feb 15, 2013
The Health Affairs February 2013 issue is titled “New Era of Patient Engagement” and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here’s a short extract from the blog...
by Susannah Fox | Feb 9, 2013
For over a year I’ve been the accidental manager of a community garden. All I did — I swear — is point out an open plot of land and people started pitching in, planting, asking friends to join them. All of a sudden we’d transformed a bare patch...
by e-Patient Dave | Feb 7, 2013
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s...
by e-Patient Dave | Dec 29, 2012
This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the...
by e-Patient Dave | Dec 16, 2012
I haven’t blogged about it much this year due to the pressures of my own work, but I’m seriously impressed with the relevance, quality and user-friendliness of the work being done by the folks at ONC (the health IT branch of the department of Health &...
by e-Patient Dave | Nov 28, 2012
The PDF at right is a summary of sample data from this new dataset. The Leapfrog Group is a highly respected patient safety organization. They’ve earned a reputation for carefully and thoughtfully assessing providers’ actual performance in quality and...
by e-Patient Dave | Nov 7, 2012
Check this trailer for a new program, to be launched in January, produced by WNED, the PBS affiliate in Buffalo: One of the challenges of starting a movement like this, especially a Society with little budget, is that you have to bootstrap, like any modern business:...
by e-Patient Dave | Oct 22, 2012
TEDMED last April was a big time for our Society. Many members were there, especially our artist-in-residence Regina Holliday and videographer Ross Martin, who collected the footage for his now-famous Gimme My DaM Data video. And, as we reported here, The Role of the...
by e-Patient Dave | Oct 6, 2012
I’ve often said that we won’t really be making a dent until our conversations show up in the popular culture – outside health and technology circles. Well, I just spotted a great example: yesterday Janet Gallin, host of the San Francisco talk show...
by e-Patient Dave | Oct 4, 2012
We’ve often written here about what a visionary our movement’s founder “Doc Tom” Ferguson was. As the medical editor of The Whole Earth Catalog and publisher of the magazine and book Medical Self-Care , he saw the role of the patient and family...
by e-Patient Dave | Oct 1, 2012
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to...
by e-Patient Dave | Aug 30, 2012
Yes, “Regina” – you know who I mean.:-) You know someone’s a star in the firmament when they gain first-name status. (Especially in healthcare, where “the other Regina” happens to be Surgeon General!) As we reported here in June,...
by Ileana Balcu | Aug 2, 2012
Another blog post from Eve Harris on KQED describing the use of medical assistant health coaches to help patients make and keep their health care goals. http://blogs.kqed.org/stateofhealth/2012/07/26/primary-care-efforts-to-involve-patients-in-decision-making/ Go Eve!...
by e-Patient Dave | Jul 28, 2012
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated “The Role of the Patient” as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it...
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