by e-Patient Dave | Jul 24, 2012
Think everything in your medical record is spotless and flawless? Think again: almost everyone I know who’s checked their record has found flaws, omissions, orders that were never carried out. There’s a lot we can do, e-patients, engaged consumers, to...
by e-Patient Dave | Jul 17, 2012
As Meaningful Use rolls out, and providers are required to share data with us, there are a lot of concerns about whether their lives will spin out of control as patients besiege them with ignorant questions. We’ve discussed this in our many posts about the...
by Kathleen O'Malley | Jun 27, 2012
This post originally appeared at http://socialmedia.mayoclinic.org/2012/06/20/2012-patient-caregiver-scholarship-contest-for-social-media-summit/. The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media...
by e-Patient Dave | Jun 19, 2012
Susannah Fox’s post about this two years ago pretty much went over my head: I didn’t get how important it was. But at this month’s White House conference on patient-generated data, I met Nikolai Kirienko, who was the central specimen in her post. The...
by Alan Greene | Jun 5, 2012
At Health Datapalooza today in Washington, DC, the Society for Participatory Medicine announced the live beta launch of our Seal Program. The SPM Seal will be awarded to clinicians and to patients who make four simple, achievable, but powerful participatory...
by e-Patient Dave | May 28, 2012
Quick update before I go out and play: SPM member @AfternoonNapper just notified me that two more of us, Katherine Kelly Leon and Sharonne Hayes MD, are also on NPR today! Patients Find Each Other Online To Jump-Start Medical Research I awoke this holiday morning to a...
by e-Patient Dave | May 3, 2012
I should have announced this long ago but I’ve just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It’ll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important,...
by e-Patient Dave | Apr 30, 2012
In today’s Boston Globe, the cover story for the daily “G” magazine is “Record-Keeping 2.0,” by Chelsea Conaboy (@cconaboy). Subtitled “Medical care is shifting to electronic data files – but how safe is it?”, it’s...
by Kathleen O'Malley | Apr 24, 2012
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence...
by Kathleen O'Malley | Apr 24, 2012
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the...
by e-Patient Dave | Apr 16, 2012
Thanks to SPM co-founder Joe Graedon of PeoplesPharmacy.com for this note about today’s special section in the Wall Street Journal on healthcare innovation. (Some of the content requires a subscription, but you can register for 8 weeks free.) Joe’s note,...
by e-Patient Dave | Apr 13, 2012
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, “We must vote.” You did. We’re in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and...
by e-Patient Dave | Mar 24, 2012
In the latest post in our Why I Joined SPM series, guest blogger Dr. Nabin Sapkota shares his story of discovering that patients like to be taught what’s going on, and how this replaced what he’d lost when he gave up doing teaching rounds. Every “why...
by e-Patient Dave | Mar 16, 2012
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s...
by Kathleen O'Malley | Mar 16, 2012
The Journal of Participatory Medicine has published “An Introduction to Self-Care,” a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her...
by Kathleen O'Malley | Mar 13, 2012
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15....
by Kathleen O'Malley | Feb 28, 2012
The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology.” Young describes how the...
by Susannah Fox | Feb 16, 2012
Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting...
by Sarah Greene | Jan 31, 2012
NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of...
by e-Patient Dave | Jan 30, 2012
Well, SPM’s resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR’s On The Media on 1/20, and now he’s on the...
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