Research Issues Archives

Update: How empathy, education, communication and the PAST Model transformed Sickle Cell patient care

by Brenda Merriweather | Jun 12, 2023

Editor’s note: The following column by Society for Participatory Medicine board member Brenda Merriweather originally appeared in this space in December 2021. We are excerpting from that column in recognition of “Advancing Health Equity Through Participatory...

Family Caregivers and Care Partners: An Essential, but Underserved Part of Participatory Medicine

by Geri Lynn Baumblatt | Feb 23, 2022

Informal, unpaid family caregivers and care partners are increasingly the backbone of participatory medicine. My father was a physician, but when he was seriously ill, it was really on my mom and me to advocate for him, understand the constellation of conditions,...

Understanding the Impact of Medication Storage Locations on Adherence

by Lisa Gualtieri, PhD, ScM | Nov 22, 2021

The answer is probably not your medicine cabinet. The answer may be your nightstand, kitchen counter, or a variety of other locations in your home. The question is, where do you store your prescription medications? I became interested in medication adherence through...

Cost, In Any Other Language

by Danny van Leeuwen | Oct 18, 2021

What does healthcare cost mean? I can’t explain it. Listen to Matt Pickering from Nat Quality Forum help us out. Consider serving as a patient rep with NQF. Listen to full 41 min episode here https://health-hats.com/pod145/ YouTube Episode Trailer Proem If a grocery...

Power of People. Pause and Trust. Lynne Becker

by Danny van Leeuwen | Jan 12, 2021

Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...

Person-First Safe Living in a Pandemic: Part 2: Finding Guidance

by Danny van Leeuwen | Dec 21, 2020

How do regular people find evidence-informed guidance to help make decisions about safe living in a pandemic? Questions answered when needed in a useful manner? Part 2 in this Person-First approach. Join our journey. Proem A few weeks ago, on this podcast, I...