by Geri Lynn Baumblatt | Feb 23, 2022 |
Informal, unpaid family caregivers and care partners are increasingly the backbone of participatory medicine. My father was a physician, but when he was seriously ill, it was really on my mom and me to advocate for him, understand the constellation of conditions,...
by Lisa Gualtieri, PhD, ScM | Nov 22, 2021 |
The answer is probably not your medicine cabinet. The answer may be your nightstand, kitchen counter, or a variety of other locations in your home. The question is, where do you store your prescription medications? I became interested in medication adherence through...
by Danny van Leeuwen | Oct 18, 2021 |
What does healthcare cost mean? I can’t explain it. Listen to Matt Pickering from Nat Quality Forum help us out. Consider serving as a patient rep with NQF. Listen to full 41 min episode here https://health-hats.com/pod145/ YouTube Episode Trailer Proem If a grocery...
by Danny van Leeuwen | Jan 12, 2021 |
Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...
by Danny van Leeuwen | Dec 21, 2020 |
How do regular people find evidence-informed guidance to help make decisions about safe living in a pandemic? Questions answered when needed in a useful manner? Part 2 in this Person-First approach. Join our journey. Proem A few weeks ago, on this podcast, I...
by Danny van Leeuwen | Nov 30, 2020 |
Healthcare activists need communities to affect change. Considering public-private partnership with NCQA’s Digital Measurement Community with Ben Hamlin. Proem Activists seek to inform and nudge change for the better – political, social, cultural, healthcare,...
by Danny van Leeuwen | Nov 9, 2020 |
Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...
by e-Patient Dave | Apr 13, 2018 |
Longtime SPM member Danny van Leeuwen (@HealthHats) is seeking nomination and support as a “patient/caregiver stakeholder” seat on the Board of Governors of PCORI, the Patient-Centered Outcomes Research Institute, about which we’ve blogged often...
by e-Patient Dave | Apr 2, 2018 |
Guest post by SPM member Francie Grace. Here’s a last minute Important item for your Monday To Do list. Spotted in a reminder tweet Friday from former U.S. Chief Data Scientist D.J. Patil (@dpatil): Hey data scientists, just a few days to give the @NIH...
by e-Patient Dave | Apr 1, 2018 |
For years many have argued that it’s wrong for research that’s funded by the government (i.e. taxpayers) to be hidden from the people who paid for it (taxpayers) by hiding the results behind paywalls. This tradition not only makes it harder for...
Building Us Up, Not Tearing Us DownSeptember 27, 2022
Active Surveillance 101: A New Resource Driven by Patients and Crafted With PhysiciansSeptember 19, 2022
Dr. Danny Sands: Participatory Medicine Can Cure Many IllsSeptember 12, 2022
Patients and the Diagnostic Journey: Finding SpecialistsSeptember 7, 2022
The Keys to Good Relationships With Your Care TeamsAugust 23, 2022
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