by e-Patient Dave | Aug 7, 2017 |
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about...
by e-Patient Dave | Aug 3, 2017 |
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,...
by e-Patient Dave | Mar 29, 2017 |
In November we posted about an extraordinary development: NEJM Data Analysis Challenge: can others create value by seeing researchers’ data? The project has come to fruition, and the big event (free) is next Monday-Tuesday. The question for us: What’s the impact...
by e-Patient Dave | Mar 27, 2017 |
An announcement today in Europe (press release below) brings a new angle to the copious US coverage of drug pricing, such as predatory pricing of the EpiPen and the smirking, seemingly sociopathic Martin Shkreli. For the drug described below, the Médecins du Monde...
by e-Patient Dave | Mar 20, 2017 |
Please cite this post as “by Dave deBronkart, Marilyn Mann and Peter Elias MD” or, on Twitter, “@ePatientDave, @MarilynMann & @PHEski.” Our blog software only allows listing one author but they provided 2/3 of the content. The medical news...
by e-Patient Dave | Nov 11, 2016 |
This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s...
by e-Patient Dave | Aug 8, 2016 |
We’d love to start a list of other patient-authored papers and posters – let us know in the comments! We know of Dana M. Lewis & Scott Leibrand’s poster about #OpenAPS in June – who else?? We’ve written before about e-patient Sean...
by David Harlow | Feb 27, 2016 |
The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...
by e-Patient Dave | Jan 18, 2016 |
Longtime readers of this blog know that for years Susannah Fox was its heart and soul. She was a devoted friend of “Doc Tom” Ferguson, creator of the e-patient concept in the 1990s, and for years at Pew Research she was the dependable guru of Pew’s...
by e-Patient Dave | Dec 13, 2015 |
As SPM advances the cause of patients as responsible drivers of their care, we sometimes hear denials or complaints from physicians who feel that e-patients needy, uninformed, self-centered burdens on busy clinicians’ time. Well, here’s a juicy...
Urgent – comment TODAY: stop this CMS rule change that suppresses hospital safety dataJune 17, 2022
Collaborative Notes, Engaged Partners, Fewer ErrorsJune 13, 2022
Creating Your Own Self-Advocacy StyleMay 5, 2022
Tell Me Your Story: How Narrative Medicine Fosters TrustApril 27, 2022
Simple Measures to Put Caring Back in Health CareApril 20, 2022
Recent Comments