by Dave deBronkart | Nov 27, 2015 |
This is a call for patient participation. We’re especially inviting members of our Society, but it’s open to anyone; feel free to circulate widely, especially to people with the conditions listed below! First, a bit of background, then the request. Regular...
by Ileana Balcu | Aug 20, 2015 |
The site Crohnology, well known patient community for patients with IBD (Inflammatory Bowel Disease), recently started focusing their blog on explaining IBD- focused research to patients. Their most recent blog post describes a study that studied what patients with...
by John M. Grohol, Psy.D. | Apr 15, 2015 |
According to a new study in JAMA, data breaches into people’s protected health information (PHI) records are increasing: “[The] study that found almost 30 million health records nationwide were involved in criminal theft, malicious hacking or other data...
by Dave deBronkart | Feb 17, 2015 |
Dr. Donald Lindberg, long-time director of the National Library of Medicine, is surely the single most-quoted authority from “Doc Tom” Ferguson’s e-Patient White Paper. In almost every speech I’ve given in the past five years I’ve used...
by Nick Dawson | Jan 31, 2015 |
Last Friday, 200 patients, advocates, scientists, doctors and researchers gathered at the White House to hear President Obama’s launch of the Precision Medicine Initiative. According to the President, precision medicine...
by Dave deBronkart | Oct 14, 2014 |
I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the “European ASCO” cancer conference) in Madrid last month: Amy Dockser Marcus has another great piece on how medicine is truly starting to engage with...
by Marilyn Mann | Jul 28, 2014 |
Preface by e-Patient Dave: We have often written here (see posts) about Shared Decision Making, in which patients are engaged in choosing among treatment options. A key method is to give patients a “decision aid” (DA) – a document or video that...
by Ileana Balcu | Jun 13, 2014 |
An interesting editorial in the BMJ (British Medical Journal) describes BMJ’s path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world....
by Marge Benham-Hutchins | May 21, 2014 |
An international conference addressing information technology and communication in health (ITCH) will be held February 26 – March 1, 2015 in Victoria, British Columbia, Canada. Professor Stephen Hawking’s statement, “we learned to talk, we learned to listen, we...
by Dave deBronkart | Mar 21, 2014 |
This isn’t directly related to participatory medicine per se, but for students of the social web and “health is social” factors, this will be fascinating and important. (In my speaking work, it’s always useful to cite new research that sheds...
Experts Meeting in Quebec Ask “Who Chooses How Much of What?”August 18, 2017
WikiProject Medicine three years on: “converting clinicians to active digital contributors”August 7, 2017
WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)August 3, 2017
Lived Experience + Expertise = ValueJuly 22, 2017
#BMJDebate tweetchat: “terms of engagement” for patient voices, noon Thursday ETJuly 12, 2017
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