by e-Patient Dave | Jan 28, 2011
Update 1/29: in a comment, Gilles Frydman pointed out that Newsweek’s Sharon Begley wrote this article almost two months before the New Yorker piece appeared – and the editors held the article, apparently due to pressure from a pharma advertiser whose...
by e-Patient Dave | Jan 13, 2011
A recurring theme on this blog is the need for empowered, engaged patients to understand what they read about science. It’s true when researching treatments for one’s condition, it’s true when considering government policy proposals, it’s true...
by Jon Lebkowsky | Jan 9, 2011
From the editors of our society’s journal, the Journal of Participatory Medicine: As we close out Volume 2 of JoPM, we’re pleased to look back at how the journal has grown. We published a total of 23 articles in 2010. We published our first two podcasts....
by e-Patient Dave | Dec 12, 2010
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
by Susannah Fox | Nov 30, 2010
What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer...
by Peter Frishauf | Oct 20, 2010
A new commentary on “Lies, Damned Lies, and Medical Science,” in the current issue of The Atlantic Monthly. [See also our previous post on the article, with dozens of comments, some of them excellent. And be sure to read Peter’s footnotes. -e-Patient Dave]...
by e-Patient Dave | Oct 17, 2010
There’s an extraordinary new article in The Atlantic, “Lies, Damned Lies, and Medical Science.” It echos the excellent article in our Journal of Participatory Medicine (JoPM) one year ago this week, by Richard W. Smith, 25 year editor of the British...
by Gilles Frydman | Sep 14, 2010
The New England Journal of Medicine’s Health Policy and Reform just published an opinion piece about the first public release of online report cards regarding 221 of the 1,100 US cardiac surgery programs. The authors believe that this event will fuel the debate...
by Peter Frishauf | Aug 26, 2010
We welcome Peter Frishauf as an author on our blog. Peter is on the Editorial Board [brief bio] of our Society’s Journal of Participatory Medicine, and as described below, has already authored some important material on this subject. His first post here is...
by e-Patient Dave | Aug 7, 2010
Last night I got word of an unexpected treat: an hour-long conversation between some real experts about participatory medicine. It’s on Andrew Schorr’s Patient Power site – he and his team are powerhouses as well, and they produced a special...
by e-Patient Dave | Aug 2, 2010
Two posts have brought into wrenching relief one of the more difficult topics I’ve encountered in healthcare: the challenge of understanding diagnosis, especially when difficult pathology is involved. It started with When a biopsy cannot completely rule out...
by e-Patient Dave | Jul 20, 2010
Participate in a public survey here at the OpenNotes project website: what do you think will happen when notes are made visible to patients? Five weeks ago we wrote about the start of the OpenNotes project, funded by Robert Wood Johnson Pioneer Portfolio. The...
by Susannah Fox | Jul 16, 2010
The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series...
by e-Patient Dave | Jul 9, 2010
Yesterday’s post “Why Gary Schwitzer joined” sparked a lot of discussion, online and off. Why not turn it into a series?? The next to submit is Kent Bottles MD, president of the Institute for Clinical Systems Improvement (ICSI). He’s deep, as...
by Susannah Fox | Jun 16, 2010
Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you: His own post on Embargo Watch: “More thoughts on ASCO: How the embargo policy can...
by e-Patient Dave | Jun 11, 2010
I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being...
by e-Patient Dave | Jun 6, 2010
A big deal happened in Washington Wednesday – something I barely knew was happening: The Community Health Data Initiative (CHDI) was announced at the Institute of Medicine. It’s exciting to me, because at long last we’re getting the chance to let...
by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by e-Patient Dave | May 18, 2010
Patient networks for the win! MIT Technology Review: “Earlier this month, the journal Lancet Neurology published a study showing that the generic drug lithium did nothing to slow the course of ALS … Eighteen months earlier, PatientsLikeMe, a for-profit...
by Susannah Fox | May 11, 2010
As I’ve written before, I love questions. It’s an honor to be handed someone’s nascent idea and to help them shape it (which is what I think a question really is). But this time I’m asking for YOUR input. These excellent questions were sent to...
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