by Ileana Balcu | Oct 22, 2014
Wikipedia says “Participatory medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as  full partners.” That movement gets a big boost in...
by Casey Quinlan | Sep 4, 2014
Preface (later) by e-Patient Dave – Casey and I were discussing that one of the obstacles impeding changing in medicine is that by law, corporate officers have to serve their shareholders first, i.e. make money before they get into any do-gooder stuff. The...
by e-Patient Dave | Aug 9, 2014
This article was part of the big Health Affairs issue “New Era of Patient Engagement” (Feb 2013) which Ileana Balcu blogged about at the time. I’ve long been a fan of the Patient Activation Measure, which IÂ wrote about here three years ago in The...
by e-Patient Dave | Jul 29, 2014
An article of importance to our movement appeared in June, in our Journal of Participatory Medicine. It’s an analysis of twelve years of literature about patient engagement, documenting what words people used, what context they appeared in, and (perhaps most...
by e-Patient Dave | Jul 27, 2014
Ah, social media. On Facebook a couple of hours ago, Swedish SPM member Sara Riggare posted: Responses were quick and robust: “Web MD has an app that you can download that I use. I find it pretty useful.” –Â Mark Burek “That’s a sticky...
by Susannah Fox | Jul 23, 2014
At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Meredith Gould and me about the power and pitfalls of people sharing their health experiences online. We are “flipping” the panel by sharing...
by Ileana Balcu | Jun 13, 2014
An interesting editorial in the BMJ (British Medical Journal) describes BMJ’s path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world....
by e-Patient Dave | Jun 10, 2014
Regular readers know that this blog has long advocated for patient access to, and engagement with, the medical record. In the past 2-3 years we’ve especially advocated for OpenNotes, in which patients can see their primary’s actual visit notes.  At my...
by Ileana Balcu | May 6, 2014
Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient’s hospital stay – really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress...
by e-Patient Dave | May 4, 2014
Guest post by SPM member Leslie Kernisan, whose words first appeared here in a September interview at Medicine X: “Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who’s deeply interested in and committed to enabling elders and caregivers through patient...
by Casey Quinlan | May 1, 2014
OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...
by David Harlow | May 1, 2014
The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...
by Ileana Balcu | Apr 3, 2014
By Mark Branning and Brad Tritle Mark Branning is Principal at mdb Healthcare IT Solutions, Adjunct Professor at National University, a member of the HIMSS Connected Patient Committee and co-chair of the Connected Patient Community. Mr. Branning has spent 33 years...
by e-Patient Dave | Mar 27, 2014
The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don’t you love the logo? Turning the clinic on its ear?) It’s utterly engaging and empowering...
by Casey Quinlan | Mar 11, 2014
Since HIMSS14, there’s been a robust discussion on the SPM listserv about the “business of IT” in healthcare. There were a number of our number present in Orlando for the HIMSS conference, with some of them appearing on the platform. The conversation...
by e-Patient Dave | Mar 5, 2014
Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may...
by e-Patient Dave | Mar 5, 2014
Care designers and fans of patient-centered care, listen up: a hat tip to Danish friend Malene Louise Djurhuus Laubinger for this, from The Guardian: How collaborating with patients improves hospital care. We’ve often said on this blog that participatory...
by e-Patient Dave | Feb 25, 2014
Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University’s Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post...
by David Harlow | Feb 4, 2014
The lab test result data access rule is finally final. See the HHS press release and the final rule, which is scheduled to be published on Thursday. What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of...
by e-Patient Dave | Jan 1, 2014
The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog. In our Society for Participatory Medicine, part of our work is to...
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