by e-Patient Dave | Nov 7, 2011
“Patients are overwhelmingly interested in gaining rapid access to their notes … doctors have not experienced significant disruptions to their work.” Hear hear! That’s from a new commentary published Monday in Modern Healthcare about the...
by e-Patient Dave | Nov 2, 2011
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction....
by e-Patient Dave | Oct 27, 2011
We’ve sometimes written about doctors as e-patients. (There are a lot!) Here’s the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him pills. It didn’t make sense to him. So he did what...
by e-Patient Dave | Oct 20, 2011
An essential aspect of participatory medicine – and Federal meaningful use criteria – is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue...
by e-Patient Dave | Oct 14, 2011
In any movement there’s a stage of maturation, where aspirations get fleshed out with specifics. That time is arriving for participatory medicine. As patient engagement (aka consumer engagement) Â earns attention, the question increasingly arises: “Where do...
by e-Patient Dave | Oct 11, 2011
Participatory medicine requires an empowered partnership, in which patients express their wants and pursue their goals in partnership with providers who hear them and work together. And that’s not just about the biology. In this powerful narrative, a hospital...
by e-Patient Dave | Sep 29, 2011
Yesterday the New York Times reported that some health insurers have applied to regulatory agencies to push premiums sharply higher – usually double-digit increases, while citizens are suffering.  This falls on top of the 11 year history reported last year by...
by e-Patient Dave | Sep 23, 2011
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new...
by e-Patient Dave | Sep 18, 2011
Tessa Richards, assistant editor at the British Medical Journal, has posted a well reasoned commentary on the BMJ site, “Enlist the patients’ help.” I’m no expert on the UN’s work here but what we seem to be seeing is, once again,...
by e-Patient Dave | Sep 17, 2011
Another post from the Inspire.com network of patient commuÂniÂties. This one’s from New Hampshire resident Linnea Duff, an active Inspire participant who has Stage IV NSCLC (non-small-cell lung cancer). She blogs at Life And Breath. It’s often been said...
by e-Patient Dave | Sep 10, 2011
This is a guest post by SPM member John Sharp, Manager of Research Informatics at the Cleveland Clinic. John gets it about how information empowers healthcare and e-patients. I first met him at Medicine 2.0 in Toronto, 2009, after which he wrote an article for our...
by e-Patient Dave | Sep 1, 2011
Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position. The issue is whether by...
by e-Patient Dave | Aug 30, 2011
SPM member John Novack of Inspire.com sent this, about a project some members of an Inspire patient group created. They got the Mayo Clinic to explore whether a clinical trial can be done in a very unconventional setting: across the internet, instead of within one...
by e-Patient Dave | Aug 23, 2011
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In...
by e-Patient Dave | Aug 17, 2011
I’m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It’s like we’ve been ships in the night – not crossing...
by e-Patient Dave | Aug 8, 2011
Guest post by SPM member Nancy B. Finn, author of the forthcoming book e-Patients Live Longer: The Complete Guide to Managing Your Health Using Technology. Participatory medicine depends on the availability of health information to all members of a care team....
by e-Patient Dave | Aug 7, 2011
An SPM member [name redacted – wishes to remain anonymous :–)] emailed this, with the playful subject line “A New e-Patient”: (Click the image to go to the high-res on the comic’s site; © Copyright 2011 King Features Syndicate, all rights...
by e-Patient Dave | Aug 2, 2011
The Society for Participatory Medicine  recently named three new board members. They’ve been introduced to the members on our private listserve, and we’ve been thinking about introducing the new leadership to the public here. One is Sue Woods MD MPH, a...
by e-Patient Dave | Jul 27, 2011
SPM co-founder and co-chair emeritus Alan Greene MD, of DrGreene.com, just posted this tasty numerical comparison. Remedy, he says? “Working together can be one of the best ways to prevent errors, which is one of the reasons I believe...
by e-Patient Dave | Jul 26, 2011
Now up on YouTube: You, the patient, are a vital component of medical decision making. Believe it or not, it’s worth your effort to find out about your treatment options! This informal FlipCam vignette models a physician encouraging the patient to ask:...
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