by e-Patient Dave | Oct 23, 2012
Quick, quick, do this now! Â Go add your signature to the hundreds who have already signed – this is about getting us access to our lab results, the same as any other health data! How important is this? Â Here’s a video of SPM member Ann Waldo discussing it...
by e-Patient Dave | Oct 22, 2012
TEDMED last April was a big time for our Society. Many members were there, especially our artist-in-residence Regina Holliday and videographer Ross Martin, who collected the footage for his now-famous Gimme My DaM Data video. And, as we reported here, The Role of the...
by e-Patient Dave | Sep 10, 2012
In yet another terrific discussion on our members’ listserv, Casey Quinlan of Mighty Casey Media (Twitter @MightyCasey, @CancerForXmas) gave powerful voice to a patient’s perspective on controlling medical costs. I asked her to write it up. Go, Casey!...
by e-Patient Dave | Aug 30, 2012
Yes, “Regina” – you know who I mean.:-) You know someone’s a star in the firmament when they gain first-name status. (Especially in healthcare, where “the other Regina” happens to be Surgeon General!) As we reported here in June,...
by e-Patient Dave | Aug 24, 2012
Over on Mind The Gap, Steve Wilkins (Twitter) has a poster about patient engagement that annoyed me:-) right out of the box – because although I pretty much like everything he does, the poster starts with what I find to be the ouchiest mental disconnect in all...
by Kathleen O'Malley | Aug 14, 2012
This listserv exchange between new Society for Participatory Medicine members is a nice example of how “newbie” e-patients often come to us with decades of experience and well-honed (and well-blogged) philosophies of what healthcare should be and can be....
by Kathleen O'Malley | Aug 1, 2012
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He’s @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are...
by e-Patient Dave | Jul 25, 2012
On Monday Ileana Balcu posted about a great new article by SPM member Eve Harris, whom we’ve covered before. Eve’s post is a superb depiction of how an empowered patient – someone who knows how to think for themselves and speak up –...
by e-Patient Dave | Jun 23, 2012
In our Society for Participatory Medicine we define this new approach to medicine as …a movement in which networked patients shift from being mere passengers to active drivers of their care, and providers encourage and value them as full partners. An article in...
by e-Patient Dave | Jun 12, 2012
I’ve received an interesting request: Women Executives in Healthcare, a Hartford professional organization, will hold a meeting this fall themed around “Who owns your data?” And they asked, what are patients’ top five issues? Of course I have...
by Alan Greene | Jun 5, 2012
At Health Datapalooza today in Washington, DC, the Society for Participatory Medicine announced the live beta launch of our Seal Program. The SPM Seal will be awarded to clinicians and to patients who make four simple, achievable, but powerful participatory...
by Kathleen O'Malley | Apr 24, 2012
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the...
by e-Patient Dave | Apr 13, 2012
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, “We must vote.” You did. We’re in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and...
by Kathleen O'Malley | Apr 9, 2012
This guest post by SPM member Scott Strange originally appeared on his blog, Strangely Diabetic. Scott will host this week’s #s4pm Tweetchat on Wednesday, April 11 at 8pm Eastern/5pm Pacific (username @Strangely_t1) on #diabetes. It seems that every day we read...
by e-Patient Dave | Jan 17, 2012
Updated 9:38pm ET – fixed many broken links :-/ I’m spending today (ONLY today, unfortunately) at the MIT Media Lab’s third annual Health & Wellness Innovation event. Â It’s a two week competition – six teams pursuing some terrific...
by e-Patient Dave | Jan 10, 2012
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
by e-Patient Dave | Dec 2, 2011
New SPM member @AfternoonNapper Sarah Kucharski was just featured on the Stanford School of Medicine blog, for a conversation she had on their Medicine X blog (emerging technologies) about how web-savvy patients are changing what’s acceptable in medicine. Well...
by e-Patient Dave | Nov 28, 2011
The excellent ICMCC daily newsletter just alerted me to this item from Permanente Journal:Â Interview with Lawrence Weed, MD —Â The Father of the Problem-Oriented Medical Record Looks Ahead. I hope to absorb it in the next day or two, and I invite people who know...
by e-Patient Dave | Nov 10, 2011
To read this post in English, click here. HacÃa tiempo que tenÃamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la...
by e-Patient Dave | Nov 10, 2011
It’s been a  long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish,...
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