by Susannah Fox | Jun 17, 2011
Treat yourself to 3 minutes of Don Berwick’s 2009 speech on patient-centered care, which at a certain point becomes an elegy: Now cheer yourself up with the latest article from the Journal of Participatory Medicine: “The Cancer Supportive Care Model: A...
by Kathleen O'Malley | Jun 16, 2011
Guest blogger Meredith Gould is on Twitter as @meredithgould and @HealthFaith. Over a year ago, I agreed to write about my personal experience with fibromyalgia for a new health and wellness site. The piece wasn’t going to be published for a while and although I...
by Kathleen O'Malley | Jun 14, 2011
This guest post by SPM member Ellen Hoenig Carlson was inspired by a study on the prevalence of medical errors, published in the April issue of Health Affairs. Medical errors are one of the nation’s leading causes of death and injury. The famed 1999 Institute of...
by e-Patient Dave | Jun 7, 2011
This guest post by SPM member Peter Schmidt is long overdue. I asked him to write it months ago after discussion on our post Tips for Understanding Studies (Health News Review). Apologies for the delay. If you’d like to submit a guest post, see our guidelines. I...
by e-Patient Dave | Jun 3, 2011
SPM member Sue Woods, of Oregon Health and Science University and the Veterans’ Administration, has posted a terrific response to CNN.com’s “Ten dumb things you do at the doctor’s office” and to our discussion of it here. Titled Dumb...
by e-Patient Dave | Jun 1, 2011
Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including: Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about...
by e-Patient Dave | May 29, 2011
Additions late 5/30/11: First, once again the comment discussion has colored some people’s view, including mine, of this discussion. That’s good. Second, in response to comments, I made a couple of edits, striking through the old text, and tonight I...
by e-Patient Dave | Apr 27, 2011
Credit where credit is due. The Danish Medical Association’s annual meeting is coming up in a few days. For the event’s blog, they requested a post about patient engagement! I wrote about the pioneers at my hospital who for many years have been saying that...
by e-Patient Dave | Apr 18, 2011
Two years ago we wrote “Let’s hear it for the ‘d-patients'” — doctors who become e-patients themselves. We said “D-patients prove that patient empowerment is anything but anti-doctor. Heck, sometimes it’s a doctor preservation...
by e-Patient Dave | Apr 10, 2011
Joe and Terry Graedon, long-time friends of “Doc Tom” Ferguson, produce The People’s Pharmacy, a website and radio program on NPR. Last Saturday’s program was about the Society for Participatory Medicine, which they helped to found in 2009....
by e-Patient Dave | Mar 20, 2011
Today’s post on Paul Levy’s blog led me back to this November post, where he posted this 35 minute lecture. I was going to write about the subject, embedding this at the end, but you have to absorb this first. Clinicians and patients alike, please watch. I...
by Dan Hoch | Mar 7, 2011
I don’t hide the fact that I am a dyed in the wool liberal. I read, and agree with, pretty much everything Paul Krugman writes. But, it’s rare for me to discover the kind of synergy between my Krugman-inspired ire over economic policy and politics generally and the...
by e-Patient Dave | Mar 1, 2011
This is an unusual contribution in our series Why I Joined. As we’ve observed (August 2008, February 2009, February 2011) that language can be important in social movements, because as words change their meaning, messages can get crossed, and what a speaker...
by e-Patient Dave | Feb 27, 2011
Again this year, as in 2009 and 2010, we’re pleased to highlight Rare Disease Day (February 28), with a post from Wendy White of Siren Interactive. Here’s last year’s prolog: One profound shift in healthcare enabled by the internet is the Web’s...
by e-Patient Dave | Feb 25, 2011
In December we posted about practice variation and shared decision making (SDM), a field of research originated at Dartmouth decades ago and best known as publisher of the Dartmouth Atlas, which describes the amazing amount of unexplained variation in how many doctors...
by e-Patient Dave | Feb 23, 2011
ABCNews.com has posted a great new piece by Roni Zeiger MD, “The Biggest Wasted Resource in Health Care? You.” Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It’s well reasoned and clearly written, and continues the...
by e-Patient Dave | Feb 18, 2011
The Institute for Healthcare Improvement (IHI) has generously released the session video of the keynote that SPM president Dr. Danny Sands and I delivered at the IHI’s annual Forum in December. At this event the IHI did two extraordinary patient-oriented things:...
by David Harlow | Feb 16, 2011
There is a growing recognition within the medical-industrial complex that the patient is a key element of the enterprise, and that patient satisfaction, patient experience, patient engagement, patient activation, patient-centeredness are very important. Some research...
by e-Patient Dave | Jan 13, 2011
A recurring theme on this blog is the need for empowered, engaged patients to understand what they read about science. It’s true when researching treatments for one’s condition, it’s true when considering government policy proposals, it’s true...
by e-Patient Dave | Dec 29, 2010
Kent Bottles MD is one of the best healthcare thinkers I’ve met. Yesterday he completed a two-part tour de force on The Health Care blog titled “The Difficult Science.” Here are part 1 and part 2. This is about “how do we know what we think we...
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