by Susannah Fox | Dec 28, 2010
Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D., last September: As you listen to Dr. Coombs’s chilling story about...
by e-Patient Dave | Dec 20, 2010
Headline and body edited Oct 6, 2013: the original post talked about “practice variation,” but that was bad wording. The problem is unwarranted practice variation: variation that, when studied, is not warranted by actual differences between cases....
by e-Patient Dave | Dec 12, 2010
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
by e-Patient Dave | Dec 6, 2010
I’m at the annual IHI Forum in Orlando, in an all-day workshop (class photo at left) titled “Whose Care Is It, Anyway … and Can Health IT Help?” Laura Adams of the Rhode Island Quality Institute was just talking about the social obstacles to...
by e-Patient Dave | Dec 2, 2010
A year ago Gangadhar Sulkunte shared his story here about how he and his wife became e-patients of necessity, and succeeded, resolving a significant issue through empowered, engaged research. As today’s guest post shows, he’s now actively engaged in...
by e-Patient Dave | Nov 27, 2010
I’m preparing to participate next month in a seminar on shared decision making, and some homework led me to this government paper, published in July: Equity & Excellence: Liberating the NHS (PDF, 339k). I must not have been paying attention to my UK friends...
by e-Patient Dave | Nov 13, 2010
John Moore of Chilmark Research has another great post, this time on the realities being discovered about PHR use among the urban poor – something most observers considered unlikely. It’s aptly titled Smashing Myths & Assumptions: PHR for Urban...
by e-Patient Dave | Nov 11, 2010
Previous title: “Morgan Stanley, April 2010: Mobile will be bigger than desktop. Discuss, re health.” Thanks to @Rohal and others for tweeting about a talk on internet* trends Tuesday by Mary Meeker of investment banker Morgan Stanley, at their Future of...
by e-Patient Dave | Nov 4, 2010
Josh Seidman is in charge of Meaningful Use at the Department of Health and Human Services. (Meaningful Use refers to the guidelines for how providers should use electronic medical records.)Â He wants input from us – that’s you: ONC is eager to get as much...
by e-Patient Dave | Oct 27, 2010
Update Jan. 18: the video has just been released – see it at the bottom of this post. TEDMED is a truly extraordinary conference in San Diego, a fall sibling of TEDÂ talks focused on medicine. TED talks are just 18 minutes long, chosen and designed to blow your...
by e-Patient Dave | Oct 23, 2010
Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who’s illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which...
by Jon Lebkowsky | Oct 12, 2010
This is e-Patients.net’s first opportunity to host Grand Rounds, which is a collection of some of the medical blogosphere’s best writing over the last week. We asked bloggers to look at our sister website, the peer-reviewed Journal of Participatory...
by Jon Lebkowsky | Oct 6, 2010
e-Patients.net is hosting Grand Rounds next Tuesday, October 12. We’re asking this week’s Grand Rounds bloggers to create posts inspired by, supportive of, or critical of articles in the Journal of Participatory Medicine. We have a great reason for...
by Charlie Smith | Sep 22, 2010
The Journal of Participatory Medicine (JoPM), the online peer-reviewed, open access publication of the Society for Participatory Medicine, has released new content for its 2010 volume. The journal’s mission is to transform the culture of medicine from a delivery...
by e-Patient Dave | Sep 20, 2010
You can’t be well empowered if you hear advice wrong. That’s why, in a participatory relationship, an essential skill is accurate handoff of information. The Foundation for Informed Medical Decision Making, catchily pronounced “fimdim,” has...
by e-Patient Dave | Sep 17, 2010
One of the essential enablers of participatory medicine is that the internet brings patients together with information and with each other. Sometimes those connections seem improbable, such as when an acute cancer patient finds much in common with patients who have a...
by e-Patient Dave | Aug 28, 2010
Today I’m participating in a workshop, “Engaging Minority Communities in Safer Healthcare,” organized by MITSS (Medically Induced Trauma Support Services), a Boston non-profit I’ve written about before. The current speaker is Lisa...
by e-Patient Dave | Aug 19, 2010
Well, here’s a treat: Dr. Charles Smith, a founder of the Society for Participatory Medicine, recently gave a lecture at Duke titled “How to Become a More Effective e-Patient.” Here it is, in four YouTube segments. “Charlie,” as we all...
by e-Patient Dave | Aug 12, 2010
Next in our series of posts about our founder Doc Tom. Previous time capsules: 1980 and 1985. Come, ye economics buffs and algebra fans; get out your pencils and solve for x, n, and XX: Whatever else the year 19XX is remembered for, it will — without a doubt — go down...
by e-Patient Dave | Aug 10, 2010
Last Friday we dug up our founder Doc Tom’s Seven Laws of Self-Care, from 1985. At one time Tom served as medical editor of the Whole Earth Catalog, the Woodstock-era empowerment resource whose subtitle was “Access to Tools.” At left (click to...
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