by e-Patient Dave | Aug 8, 2010
Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio. This item has nothing to do with OpenNotes itself – it’s what I’m seeing now that I’ve started accessing my...
by e-Patient Dave | Aug 7, 2010
Last night I got word of an unexpected treat: an hour-long conversation between some real experts about participatory medicine. It’s on Andrew Schorr’s Patient Power site – he and his team are powerhouses as well, and they produced a special...
by e-Patient Dave | Aug 5, 2010
Regular readers know that our founder, “Doc Tom” Ferguson, was an absolute visionary who saw that patients have a much bigger role in their own health than most people realize – at least in our culture. The white paper at top right of this site is...
by e-Patient Dave | Aug 3, 2010
Next in our “Why I Joined” series is Victor Montori, MD of the Mayo Clinic. My wife and I met him in May; he’s high energy, with boundless optimism. And as you’ll see, he feels very strongly about patients being at the center of healthcare. The...
by e-Patient Dave | Aug 2, 2010
Two posts have brought into wrenching relief one of the more difficult topics I’ve encountered in healthcare: the challenge of understanding diagnosis, especially when difficult pathology is involved. It started with When a biopsy cannot completely rule out...
by e-Patient Dave | Jul 25, 2010
Next in our series, Mark Boguski, MD, PhD is both a personal and a corporate member, as co-founder with Dr. Alan Littleford of ResoundingHealth. If you’d like to submit your own reason, write to me. (This is not an “invitation only” series –...
by Susannah Fox | Jul 18, 2010
e-Patient Dave’s book, Laugh, Sing, and Eat like a Pig, is out! Mark Graban captures the health geek excitement: The best writers make you feel like you’re spending time with a wise friend — add some tears and laughs and you have Dave’s book. I...
by e-Patient Dave | Jul 9, 2010
Yesterday’s post “Why Gary Schwitzer joined” sparked a lot of discussion, online and off. Why not turn it into a series?? The next to submit is Kent Bottles MD, president of the Institute for Clinical Systems Improvement (ICSI). He’s deep, as...
by e-Patient Dave | Jul 8, 2010
Correction: the email address for volunteering has been updated to volunteer@participatorymedicine.org We’ve written many times about Gary Schwitzer and the excellent work he does at Health News Review. Last December I said reading health news carefully is a...
by e-Patient Dave | Jul 7, 2010
Prolific, unsinkable Maggie Mahar commented today on the Century Foundation’s HealthBeat blog about Paul Levy’s “Yes, Patients Can Help Their Doctors” introduction to my forthcoming book. Among other things she pointed out, correctly, that not...
by e-Patient Dave | Jun 30, 2010
Earlier this month I wrote that the OpenNotes project had kicked off. It’s important – if you haven’t read about it, please click that link. My primary physician and I are participating, but candidly I didn’t expect to get much out of it: as I...
by e-Patient Dave | Jun 27, 2010
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.)Â Not only are statistics often misinterpreted; even when they’re correctly understood,...
by e-Patient Dave | Jun 21, 2010
Paul Roemer (LinkedIn, Twitter ) is speaking this Thursday at Health 2.0 in Bethesda. He’s a Twitter friend who has a lot in common with me: a cancer kicker with a business background, who now sees himself as an e-patient. There’s one big difference: he went...
by e-Patient Dave | Jun 11, 2010
I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being...
by e-Patient Dave | Jun 7, 2010
Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly...
by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by e-Patient Dave | May 22, 2010
Meet Donna Cryer – another person who was an e-patient before she ever heard the word. (Weren’t we all?) As with Diane Engelman’s “mama lion” story this week, we connected with Donna through the internet. I heard her speak last month at...
by e-Patient Dave | May 18, 2010
Through the magic of Google Alerts, Diane Engelman recently learned of this blog. She’s one heck of an e-patient, though until now she’d never heard the word. That proves patient empowerment is a real trend, driven by a powerful force: the desire to help...
by e-Patient Dave | May 18, 2010
Patient networks for the win! MIT Technology Review: “Earlier this month, the journal Lancet Neurology published a study showing that the generic drug lithium did nothing to slow the course of ALS … Eighteen months earlier, PatientsLikeMe, a for-profit...
by e-Patient Dave | May 17, 2010
Thanks to the extraordinary Dutch e-patient / expert patient Lodewijk Bos (Twitter), president of ICMCC, I discovered this classic that I didn’t know existed. Our founder “Doc Tom” Ferguson died 8 months later so I never knew him, but this piece...
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