e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Participatory Medicine in Pinstripes: What Baseball Can Teach Doctors
The Yankees terminated the manager with the best record in baseball – because today management must be based on evidence, shared decision making and communication: participatory medicine in pinstripes!
Care Coordination, The Holy Grail of Good Medicine
Appropriate patient care revolves around a team of individuals that includes the patient, a variety of clinicians and other providers, caretakers and patient advocates. The members of this team must collaborate to ensure that the best possible decisions are made on...
How to participate in the 2017 Patients’ View Impact Awards #PVImpact17
It's that time again! Our friends at the Patients View Institute GoPVI.org are again running their "impact awards." I got to be present during the award's sessions in DC last year, and it's just terrific what they're doing - harvesting patient stories with a...
My Mother’s Scrap of Paper
I'm known in social media for my role as @EMRAnswers. Most people don't know the personal and family pain that makes me know how important this is. Here it is. (That's me above, sharing my story at the Walking Gallery meetup at HIMSS in 2015 - more on this in a...
Sarah Krüg’s TedX: “The Patient Doctor Tango”
This may be the best short talk ever about the importance of participatory medicine. SPM’s past president Sarah Krüg (@SaraKrug1) recently did a 10 minute TEDx Talk in Brussels. It’s one of those rare ones that’s pretty riveting. Watch it....
Learning More from ‘Less is More’ Medicine
(part three of three) Lessons from Quebec for Choosing Wisely and Less is More Medicine After a busy few days tracking topics around the researchers and policy-makers at a recent "Preventing Overdiagnosis" conference in Quebec aimed at reducing over-treatment in...
How many tries does it take to flip a physician?
(chapter two of three) Watching physicians pivot from 'More is Better' to 'Less is More' For British cardiologist David Warriner it all began when he was a trainee MD and it was his job to organize the daily tests ordered on the ward. Time and again he found himself...
Health Partner or Care Partner?
Navigating the health journey is complex, treacherous, and emotional. Few can successfully navigate alone. The health partner/care partner helps you navigate the health journey. They commit to being your wing person, your chief of staff, a person you trust to problem solve and hang in there with you. So is this person a health or care partner?
Healthcare Experts in Quebec Ask “Who Chooses How Much of What?”
(Part one of three) You Are (Almost) There Have you ever been to a big trade event in a hot sector like healthcare or tech? If you are a member of S4PM, perhaps it was at CES or HIMSS or Health 2.0 or a MedX or a TedMed event. If such a scene is familiar, then...
WikiProject Medicine three years on: “converting clinicians to active digital contributors”
"To help inform patients of the best scientific knowledge..." “...as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about the conditions that...
WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)
I'm taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here's the original, from March 5,...
Lived Experience + Expertise = Value
Recently I connected a patient expert in insurance and provider billing with a patient at the tail end of chemo struggling with huge unexpected bills. I introduced a cancer survivor with web design skills to a patient advocate setting up a new blog. I linked a parent...