by e-Patient Dave | Sep 30, 2012
I’ll be blunt here: three years ago, late 2009, when I gave my first keynote speech ever, many observers said “Well Dave, that’s fine for you, but you’re the only one.” I replied: if I’m the only one, there’s nothing to talk...
by e-Patient Dave | May 20, 2012
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...
by Ileana Balcu | May 18, 2012
Neil Versel, a HIT journalist, relates a very touching story of his father’s care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good experience. Unfortunately Neil’s father had a rare poorly...
by e-Patient Dave | May 5, 2012
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: “How often, before this administration, did Washington make it truly easy for anyone to tell...
by e-Patient Dave | May 2, 2012
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] ____________ New, 11pm ET on May 2: See Regina Holliday’s addition at bottom. Evening addition: In a comment below, SPM policy...
by e-Patient Dave | Apr 15, 2012
SPM member Brian Ahier posted this petition notice – and call for comments to the government – on the SPM member listserv. Written by Dave Chase of Avado, it deserves public attention. ONC: Strengthen the Patient Engagement requirements of Stage 2...
by e-Patient Dave | Mar 26, 2012
Since November I’ve been blogging on my personal site about what happens when a patient tries to help control costs, in my cost cutting edition posts. Most recently I noted that this stuff takes time, especially since our glorious American healthcare system...
by e-Patient Dave | Mar 20, 2012
This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading “Today’s update.” As we said in December, an e-patient essential is sorting out what writings to trust, whether we find them...
by e-Patient Dave | Jan 26, 2012
Edits made in the discussion at bottom, 1/27. Quick post from the media table at today’s Medicare Innovation Summit: Deservedly famed surgeon & author Atul Gawande just put together a bunch of thoughts into a potent summary. Paraphrasing from memory: There...
by e-Patient Dave | Jan 24, 2012
Another potent guest post by SPM member Alexandra Albin, @MsAxolotl. If this doesn’t give you a sense of who is “the ultimate stakeholder” in health matters, nothing will. Remember, “patient” is not a third person word. Your time will...
by e-Patient Dave | Jan 20, 2012
We often say here “Gimme my damn data,” referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, “Nothing about me without me.” And where, we might ask, is that more vital...
by e-Patient Dave | Jan 10, 2012
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
by Kathleen O'Malley | Oct 28, 2011
This guest post by Lisa Gualtieri originally appeared in the author’s health blog. “By the time you see the doctor, you’re either dead or you’re better,” my mother-in-law told me. She had to have multiple tests, all with long waits to get the appointments and...
by David Harlow | Sep 30, 2011
On September 14, HHS released for comment draft lab results regulations that will, if finalized, effectively bathe the Achilles’ heel of health data in the River Styx of ¡data liberación! Lab results will be made available to patients, just like all other...
by e-Patient Dave | Feb 24, 2011
EMR and HIPAA is a great blog about health IT technology – well written, thoughtful, with personality. But I disagreed today with a post about the huge HIMSS conference (Health Information Management Systems Society) that ends today in Orlando. John wrote that...
by e-Patient Dave | Jan 13, 2011
A recurring theme on this blog is the need for empowered, engaged patients to understand what they read about science. It’s true when researching treatments for one’s condition, it’s true when considering government policy proposals, it’s true...
by e-Patient Dave | Dec 12, 2010
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
by e-Patient Dave | Oct 28, 2010
We talk a lot here about taking, owning, or reclaiming responsibility for our health and its care. If we ever update the e-patient white paper I want to include an area where we’re sometimes robbed of control at the most intimate time: death, and the months and...
by Jon Lebkowsky | Oct 22, 2010
Texas Tribune interviewed Dr. David Blumenthal, National Coordinator of Health Information Technology, for a discussion of healthcare digital convergence (i.e. transition to electronic/digital healthcare records) and the potential impact on patient privacy. He’s...
by e-Patient Dave | Sep 20, 2010
You can’t be well empowered if you hear advice wrong. That’s why, in a participatory relationship, an essential skill is accurate handoff of information. The Foundation for Informed Medical Decision Making, catchily pronounced “fimdim,” has...
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