by Ileana Balcu | Jun 3, 2015 |
Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross’s post illustrates so many aspects of how empowered, engaged, activated patients view their lives, and how important it is to have an effective...
by Danny Sands, MD | Jun 1, 2015 |
Ever since the formation of the Society for Participatory Medicine we have discussed curating and sharing resources about participatory medicine. The resources might be videos, websites, blog posts, tutorials, and other online resources that could benefit patients,...
by e-Patient Dave | Apr 16, 2015 |
Several edits made, 1-2pm There is a movement underway – a movement for patient liberation and autonomy – and the empire is striking back, interfering with our efforts. We – the whole movement, not just SPM – need your help. If you’re in...
by e-Patient Dave | Nov 7, 2014 |
Susannah Fox, long one of our most popular and prolific bloggers, is roaming to wider audiences these days. She’s entrepreneur-in-residence at Robert Wood Johnson, she has her own site, and she’s just started writing on the hip-hip site Medium.com....
by e-Patient Dave | Aug 16, 2013 |
SPM member Kelly Young is one of the most spectacular, potent, world-changing e-patients I’ve ever seen. (See our many posts here about her activism.) Aside from all her work on RAWarrior.com and her Foundation, see how she uses this case to teach. Peer-to-peer...
by e-Patient Dave | Jul 13, 2013 |
In medicine, to achieve the best you need the best information. So an essential question is, who gets to say what’s best? That question took a sharp turn this week with the news that Medpedia is dead. Medical librarian Laika Spoetnik has a strong post on the...
by e-Patient Dave | Feb 24, 2013 |
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine,...
by Ileana Balcu | Jan 24, 2013 |
The latest buzzword in the Healthcare IT (HIT) world is “patient-centric”. It seems that everyone’s device/software/solution is designed to be patient-centric. On the Society for Participatory Medicine’s internal listserv we discussed what does it take for an HIT...
by e-Patient Dave | Oct 30, 2012 |
All: I’d like to collect a list of all blog posts about this PCORI weekend, from SPM members (our Society) and anyone else. Please write to blog@participatorymedicine.org, and disregard the auto-reply that you’ll get. __________________ This post started...
by e-Patient Dave | Sep 30, 2012 |
I’ll be blunt here: three years ago, late 2009, when I gave my first keynote speech ever, many observers said “Well Dave, that’s fine for you, but you’re the only one.” I replied: if I’m the only one, there’s nothing to talk...
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