e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Crohnology Blog: Am I disabled?
The series of blog posts at the online community website Crohnology continues for patients with IBD. Duncan Cross has a post that is interesting for anyone with an autoimmune or other disabling chronic condition: Am I disabled? It discusses the Americans with...
Misdiagnosis: A Chronic Condition Looking for a Cure
According to a report in the BMJ Quality and Safety Journal, each year in the U.S. approximately 12 million adults or 1 out of 20 patients who seek outpatient medical care, are misdiagnosed in a way that could cause severe harm. These alarming statistics are further...
The e-Patient “e”s reach Japan!
As a social movement, we like to track the progress of the e-patient concept as it moves around the world. The e-patient message has been presented in at least fourteen countries that I know of. A few hours ago on Twitter, SPM member Matthew Holt, of the famous...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
EHR? What is it good for?
I live in a small country: Sweden has the population of Michigan on the land area of California, so you shouldn't really have even heard of us. But I guess that ABBA, IKEA, H&M and the Nobel Prize sort of helps :). Living in a small country of course has both pros...
Key legal victory moves medical device patients one small step closer to full access to their data
For whose benefit does the healthcare industry exist? For the investors, or the people whose needs are the reason for the industry? Facebook last night was celebrating a small but significant legal victory this week for the “gimme my DaM data” movement (“Data about...
How can we achieve shared work, connection, and communication?
Peter Elias MD is a member at large on SPM's board of directors. He's a primary care physician in Maine who, when I first met him at a speaking event, said he's always practiced this way but didn't know it had a name - participatory medicine. He's active both in...
Sure to be a complex controversy: “Concurrent surgery” (Boston Globe Spotlight series)
Ah, the world of social media. This morning's Boston Globe "Spotlight" investigative team (which won a Pulitzer in 2003) has this, citing local superstar hospitals Massachusetts General and its sister hospital, Brigham & Women's. Within an hour the discussion got...
“When someone else speaks for you, you lose”: patient empowerment as a civil rights movement
Here's something I've never done: I'm capturing a comment from this blog five years ago and making it a post of its own, so it's easier to find, because I think this is going to be more and more of an issue. It's clearer and clearer that, as SPM board member-at-large...
VIDEO: How Patients are Helping Change Medical Journals: BMJ’s Tessa Richards at MedX 2015
There can be no question that Stanford Medicine X is, head and shoulders, the most patient-oriented medical conference in the world. Susannah Fox first wrote about it here in 2012 after the first annual event, and it's gotten better every year. I agree with what she...
Perfect @ADrane graphic on the misalignment of industry’s & patients’ perspective
From the Health 2.0 conference in Silicon Valley yesterday - the best tweet and slides EVER that illuminate the difference between medicine's view of the problem and patients' experience. SPM co-founder Susannah Fox took pictures of two excellent slide by @ADrane,...
Watch: Webcast – patient engagement from the patient’s point of view
Yesterday super-e-patients Regina Holliday, Michael Seres and I spoke on a webcast titled "End-to-End Patient Engagement that Drives Loyalty and Outcomes," hosted by Liz Boehm of Vocera.com's @EINHealth Experience Innovation Network. Frankly, we autonomous e-patients...
