e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
How can we achieve shared work, connection, and communication?
Peter Elias MD is a member at large on SPM's board of directors. He's a primary care physician in Maine who, when I first met him at a speaking event, said he's always practiced this way but didn't know it had a name - participatory medicine. He's active both in...
Sure to be a complex controversy: “Concurrent surgery” (Boston Globe Spotlight series)
Ah, the world of social media. This morning's Boston Globe "Spotlight" investigative team (which won a Pulitzer in 2003) has this, citing local superstar hospitals Massachusetts General and its sister hospital, Brigham & Women's. Within an hour the discussion got...
“When someone else speaks for you, you lose”: patient empowerment as a civil rights movement
Here's something I've never done: I'm capturing a comment from this blog five years ago and making it a post of its own, so it's easier to find, because I think this is going to be more and more of an issue. It's clearer and clearer that, as SPM board member-at-large...
VIDEO: How Patients are Helping Change Medical Journals: BMJ’s Tessa Richards at MedX 2015
There can be no question that Stanford Medicine XÂ is, head and shoulders, the most patient-oriented medical conference in the world. Susannah Fox first wrote about it here in 2012 after the first annual event, and it's gotten better every year. I agree with what she...
Perfect @ADrane graphic on the misalignment of industry’s & patients’ perspective
From the Health 2.0 conference in Silicon Valley yesterday - the best tweet and slides EVER that illuminate the difference between medicine's view of the problem and patients' experience. SPM co-founder Susannah Fox took pictures of two excellent slide by @ADrane,...
Watch: Webcast – patient engagement from the patient’s point of view
Yesterday super-e-patients Regina Holliday, Michael Seres and I spoke on a webcast titled "End-to-End Patient Engagement that Drives Loyalty and Outcomes," hosted by Liz Boehm of Vocera.com's @EINHealth Experience Innovation Network. Frankly, we autonomous e-patients...
BREAKING: SPM board member Peggy Zuckerman, on NBC Nightly News tonight (about diagnostic errors)
We'll update this post as time allows, but: SPM board member (and my fellow kidney cancer patient) Peggy Zuckerman will be on the NBC Nightly News tonight (9/21). Look up the time for your local channel. See also our post this month about her participation at the...
Guest Post by Mary Beth Schoening: a Definition of the Engaged Patient
This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy...
We’re all in this together
A guest post from member Jeffrey Halbstein-Harris - this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout their...
Sep 26 – Patient Summit on Diagnosis in Alexandria, VA
To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of...
The Medical Humanity of Oliver Sacks: In His Own Words
We science-medicine-poetry junkies, along with a sizeable portion of the world’s population, are mourning the death of Oliver Sacks, the neurologist and author who died last Sunday from metastasized melanoma. And as enthusiasts of Dr. Sacks’ catechisms on the soul of...
Monthly introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This...
