by Kathleen O'Malley | Jan 11, 2012
A new article in the Journal of Participatory Medicine tackles the problem of long wait times at doctors’ offices, a leading cause of patient dissatisfaction. “Waiting Room Remedy: Doctor Pays for Delays (The Doctor’s Perspective)” by Pamela...
by e-Patient Dave | Jan 10, 2012
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
by Kathleen O'Malley | Jan 9, 2012
In the latest post in our Why I Joined SPM series, guest blogger Ileana Balcu shares her story of pain, searching, and finally healing, once she discovered the e-patient community. Follow her on Twitter at @yogileana. It was 2002 and I was happily pregnant. I thought...
by e-Patient Dave | Jan 3, 2012
As we work to re-engineer both the culture and the structure of healthcare, one question that constantly faces e-patients with uncommon or difficult conditions is: Where do I turn, to find genuine value? The traditional answer is “ask your doctor,” and...
by Kathleen O'Malley | Dec 29, 2011
The Journal of Participatory Medicine has just published “The Patient Will See You Now,” a thought-provoking and rather moving narrative by John Krueger, MD. In telling his own story of becoming and maturing as a physician, the author persuasively argues...
by Kathleen O'Malley | Dec 22, 2011
The Journal of Participatory Medicine has published a review of A Symphony in the Brain, a book that offers a history and overview of neurofeedback, a type of biofeedback that aims to help patients control their brain activity.
by e-Patient Dave | Dec 21, 2011
In the Society for Participatory Medicine we talk about patients shifting “from being mere passengers to responsible drivers of their health.” Two posts Tuesday from SPM members provide some great specifics. First, orthopedist @HJLuks published Your Role...
by e-Patient Dave | Dec 20, 2011
This post contains street language about body parts, harvested from Twitter last night with Xeni’s permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist...
by e-Patient Dave | Dec 12, 2011
We’re thrilled to welcome well-known quality and safety authority Michael Millenson as the newest member of the Society for Participatory Medicine. Here is his first guest post, referring back to his popular article in our Journal. He illustrates how recently...
by Kathleen O'Malley | Dec 6, 2011
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its...
by e-Patient Dave | Dec 4, 2011
We’re taking a page from our good friend @Berci, whose ScienceRoll blog has won numerous awards. He frequently runs an introduction post for new subscribers, to show them around the place and let them know all the things he’s up to. We’re stealing...
by e-Patient Dave | Dec 2, 2011
A prime benefit of individual membership ($30) in our Society for Participatory Medicine is the right to participate in our members-only listserv. It was pretty sleepy a year ago, but these days it’s a hotbed of juicy discussions. Here’s something that...
by e-Patient Dave | Nov 16, 2011
Usually we talk about participatory medicine at the level of the individual care relationship, but increasingly we’re seeing the need to “Design and create a safe, decent, patient centered healthcare system.” And as we start to get real about that –...
by Kathleen O'Malley | Nov 11, 2011
This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients’ blog. The November 2011 issue of Reader’s Digest reads in big, bold print, “50 Secrets Nurses Won’t Tell You.” Articles like this create fear...
by e-Patient Dave | Nov 10, 2011
It’s been a long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish,...
by e-Patient Dave | Nov 7, 2011
“Patients are overwhelmingly interested in gaining rapid access to their notes … doctors have not experienced significant disruptions to their work.” Hear hear! That’s from a new commentary published Monday in Modern Healthcare about the...
by Kathleen O'Malley | Nov 1, 2011
The Journal of Participatory Medicine has published a research paper entitled “Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices.” The study analyzed the...
by David Harlow | Oct 21, 2011
The Patient Protection and Affordable Care Act (aka the health reform law) added “patient engagement” and “patient-centeredness” to the United States Code’s lexicon. Yesterday, the Centers for Medicare and Medicaid Services finalized the...
by e-Patient Dave | Oct 20, 2011
An essential aspect of participatory medicine – and Federal meaningful use criteria – is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue...
by e-Patient Dave | Oct 19, 2011
Last week at a gala in Beverly Hills, our society’s co-founder Dr. Alan Greene was honored for his amazingly effective, empowering, democratizing WhiteOut initiative, which in six months has radically altered pediatricians’ recommendations about...
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