by e-Patient Dave | Jun 12, 2012
I’ve received an interesting request: Women Executives in Healthcare, a Hartford professional organization, will hold a meeting this fall themed around “Who owns your data?” And they asked, what are patients’ top five issues? Of course I have...
by Susannah Fox | Jun 11, 2012
Before you read this post, think of a time when you had a crush on someone. Think about that swirl of emotions, the highs and the lows. That’s where I was a couple weeks ago, except it wasn’t about a person. I fell hard for Watson, IBM’s hot new outboard brain. I’d...
by Ileana Balcu | May 24, 2012
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned....
by Ileana Balcu | May 18, 2012
Neil Versel, a HIT journalist, relates a very touching story of his father’s care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good experience. Unfortunately Neil’s father had a rare poorly...
by Kathleen O'Malley | May 7, 2012
E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients — that he may be perceived by...
by e-Patient Dave | May 6, 2012
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] How slowly culture changes. In September 2009, at the founding of our Society for Participatory Medicine, the cover of Health...
by e-Patient Dave | May 5, 2012
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: “How often, before this administration, did Washington make it truly easy for anyone to tell...
by e-Patient Dave | May 3, 2012
I should have announced this long ago but I’ve just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It’ll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important,...
by Kathleen O'Malley | Apr 30, 2012
The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site...
by Kathleen O'Malley | Apr 24, 2012
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence...
by e-Patient Dave | Apr 7, 2012
One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become “responsible drivers of their care, and providers welcome and value them as full partners,” patients participate in...
by Kathleen O'Malley | Apr 4, 2012
Co-Editors-in-Chief Joe and Terry Graedon tell patients how to get the most out of today’s all-too-brief medical office visits in the April editorial of the Journal of Participatory Medicine. “Making Every Second Count – What We Can Do As Patients”...
by e-Patient Dave | Mar 24, 2012
In the latest post in our Why I Joined SPM series, guest blogger Dr. Nabin Sapkota shares his story of discovering that patients like to be taught what’s going on, and how this replaced what he’d lost when he gave up doing teaching rounds. Every “why...
by e-Patient Dave | Mar 23, 2012
It’s terrific that so many members of the Society for Participatory Medicine are contributing guest posts that share their e-patient story or how they came to know and care about participatory medicine. This one, by Akiva Zablocki (@iPatchMan), is extraordinary,...
by Kathleen O'Malley | Mar 16, 2012
The Journal of Participatory Medicine has published “An Introduction to Self-Care,” a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her...
by e-Patient Dave | Mar 15, 2012
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient’s voice grown from an ethical demand of the patient rights movement into...
by Kathleen O'Malley | Mar 13, 2012
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15....
by e-Patient Dave | Mar 1, 2012
This was originally posted on my own site. Social media response has said the examples of dialog help people envision how they can express things with their providers. There’s a new ending, at bottom. There’s nothing here that will be a surprise to any...
by Kathleen O'Malley | Feb 28, 2012
The Journal of Participatory Medicine has published a narrative by Kelly Young entitled “Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology.” Young describes how the...
by Kathleen O'Malley | Feb 1, 2012
A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled...
Collaboration is the Best Medicine: How to Partner with Your Doctor for Better CareOctober 6, 2025
Collaboration is the Best Medicine: Bridging the Gap in Patient ParticipationSeptember 23, 2025
Dealing with Medical Uncertainty, Ambiguity, and FrustrationSeptember 13, 2025
Collaboration is the Best Medicine: The Time for Participatory Medicine is NowSeptember 10, 2025
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
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