Search all of the Society for Participatory Medicine website:Search

Is “gimme my damn data” damning to patients?

E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients — that he may be perceived by...

Making Sense of “Patient-Centered Care”

The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site...

System 1, System 2, Elephants and Illusions

One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become “responsible drivers of their care, and providers welcome and value them as full partners,” patients participate in...

Patients: Your Researcher Will See You Now!

Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI’s draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15....

New editorial series in JoPM asks the tough questions

A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled...

Opening the Door to Closeted Science

NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge.  Sarah is ahead of most of...

Open knowledge saves lives. Oppose H.R. 3699!

Note: Although currently not a member of the SPM, I have been involved, since its inception, with Tom Ferguson and others, in the creation of the e-patients white paper . I am also one of the co-founders of the SPM and one of the volunteers who created the...

Donate