by e-Patient Dave | Nov 6, 2012
Oh lordy, do I love this U.S. Election Day tidbit. Translate all the ideas from men/women to doctor/patient, and you’ll have the response I sometimes get when I lecture about participatory medicine. Thanks to one of SPM’s newer members, Cristin Croghan...
by Susannah Fox | Nov 4, 2012
Hurricane Sandy “slapped the snark out of Twitter” for media reporter David Carr. In his column today, Carr discusses a newfound sense of community, which will sound familiar to anyone who uses social media to navigate an acute or chronic health condition:...
by e-Patient Dave | Oct 23, 2012
USA Today has a piece today on HealthGrades, one of the sites that provide information on medical outcomes and safety. The data show that quality varies widely. Experienced e-patients know this, and will learn what they can about their local treatment options....
by e-Patient Dave | Oct 22, 2012
TEDMED last April was a big time for our Society. Many members were there, especially our artist-in-residence Regina Holliday and videographer Ross Martin, who collected the footage for his now-famous Gimme My DaM Data video. And, as we reported here, The Role of the...
by e-Patient Dave | Oct 4, 2012
We’ve often written here about what a visionary our movement’s founder “Doc Tom” Ferguson was. As the medical editor of The Whole Earth Catalog and publisher of the magazine and book Medical Self-Care , he saw the role of the patient and family...
by e-Patient Dave | Oct 1, 2012
Regular readers know that we’ve long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins: what happens when patients can see the physician’s visit notes? It tied the issue all the way back to...
by Danny Sands, MD | Sep 11, 2012
This is the blog of the Society for Participatory Medicine. Since its inception, the Society has been an entirely volunteer organization, the only exception being the Managing Editor of our Journal. While this was generally fine in the early days, we have grown and...
by e-Patient Dave | Aug 30, 2012
Yes, “Regina” – you know who I mean.:-) You know someone’s a star in the firmament when they gain first-name status. (Especially in healthcare, where “the other Regina” happens to be Surgeon General!) As we reported here in June,...
by e-Patient Dave | Aug 16, 2012
We’re not in it for “the eyeballs,” as they say in the world of website marketing: this isn’t a blog that obsesses about pageviews, unique visitors etc, for purposes of selling ads. (We don’t do ads, we don’t do link exchanges,...
by Kathleen O'Malley | Aug 14, 2012
This listserv exchange between new Society for Participatory Medicine members is a nice example of how “newbie” e-patients often come to us with decades of experience and well-honed (and well-blogged) philosophies of what healthcare should be and can be....
by Kathleen O'Malley | Aug 1, 2012
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He’s @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are...
by e-Patient Dave | Jul 28, 2012
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated “The Role of the Patient” as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it...
by Kathleen O'Malley | Jul 23, 2012
Do you like the concept of participatory medicine but wonder how to go about actually becoming an e-patient? Then this section is for you. Here e-patients and participatory clinicians will share their experience and knowledge in order to empower others to get the care...
by Ileana Balcu | Jul 3, 2012
By Michael L. Millenson The empowered patient, skeptical of professional authority, is not a new phenomenon: he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning book, The Radicalism of the American...
by e-Patient Dave | Jun 23, 2012
In our Society for Participatory Medicine we define this new approach to medicine as …a movement in which networked patients shift from being mere passengers to active drivers of their care, and providers encourage and value them as full partners. An article in...
by Ileana Balcu | Jun 20, 2012
Do you have the ideal healthcare network of individuals supporting your physical, mental, emotional, and spiritual aspects? Sally Richards does. She works with hospitals, neurofibromatosis (NF) organizations, government entities and patients in what she calls “a...
by e-Patient Dave | Jun 12, 2012
I’ve received an interesting request: Women Executives in Healthcare, a Hartford professional organization, will hold a meeting this fall themed around “Who owns your data?” And they asked, what are patients’ top five issues? Of course I have...
by Susannah Fox | Jun 11, 2012
Before you read this post, think of a time when you had a crush on someone. Think about that swirl of emotions, the highs and the lows. That’s where I was a couple weeks ago, except it wasn’t about a person. I fell hard for Watson, IBM’s hot new outboard brain. I’d...
by Ileana Balcu | May 24, 2012
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned....
by Ileana Balcu | May 18, 2012
Neil Versel, a HIT journalist, relates a very touching story of his father’s care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good experience. Unfortunately Neil’s father had a rare poorly...
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