by Kathleen O'Malley | Nov 1, 2011
The Journal of Participatory Medicine has published a research paper entitled “Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices.” The study analyzed the...
by David Harlow | Oct 21, 2011
The Patient Protection and Affordable Care Act (aka the health reform law) added “patient engagement” and “patient-centeredness” to the United States Code’s lexicon. Â Yesterday, the Centers for Medicare and Medicaid Services finalized the...
by e-Patient Dave | Oct 20, 2011
An essential aspect of participatory medicine – and Federal meaningful use criteria – is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue...
by e-Patient Dave | Oct 19, 2011
Last week at a gala in Beverly Hills, our society’s co-founder Dr. Alan Greene was honored for his amazingly effective, empowering, democratizing WhiteOut initiative, which in six months has radically altered pediatricians’ recommendations about...
by John M. Grohol, Psy.D. | Oct 16, 2011
We eagerly invite guest posts by members of our Society (not non-members), per the guidelines below. Contact information Blog curators: blog _at_ participatorymedicine.org Volunteering: volunteer _at_ participatorymedicine.org General information about our Society:...
by John M. Grohol, Psy.D. | Oct 16, 2011
Please join us for the 2nd Annual Society for Participatory Medicine Cocktail Reception, taking place on Thursday, October 20, 2011 at the Liberty Hotel in Boston (http://www.libertyhotel.com/) from 6:00 – 8:00 pm. If you’re attending the Connected Health...
by e-Patient Dave | Oct 14, 2011
In any movement there’s a stage of maturation, where aspirations get fleshed out with specifics. That time is arriving for participatory medicine. As patient engagement (aka consumer engagement) Â earns attention, the question increasingly arises: “Where do...
by e-Patient Dave | Oct 11, 2011
Participatory medicine requires an empowered partnership, in which patients express their wants and pursue their goals in partnership with providers who hear them and work together. And that’s not just about the biology. In this powerful narrative, a hospital...
by e-Patient Dave | Sep 23, 2011
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new...
by Kathleen O'Malley | Sep 21, 2011
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online...
by Kathleen O'Malley | Sep 13, 2011
The Journal of Participatory Medicine has published a new case study entitled “Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law.” The authors examine the problem of how to achieve patient...
by e-Patient Dave | Sep 10, 2011
This is a guest post by SPM member John Sharp, Manager of Research Informatics at the Cleveland Clinic. John gets it about how information empowers healthcare and e-patients. I first met him at Medicine 2.0 in Toronto, 2009, after which he wrote an article for our...
by Susannah Fox | Sep 8, 2011
When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a...
by e-Patient Dave | Sep 1, 2011
Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position. The issue is whether by...
by Kathleen O'Malley | Aug 29, 2011
The Journal of Participatory Medicine has just published a research paper, “Exploring Everyday Health Routines of a Low Socioeconomic Population through Multimedia Elicitations.” Participants in this novel study used smartphones to capture pictures and...
by e-Patient Dave | Aug 23, 2011
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In...
by Kathleen O'Malley | Aug 22, 2011
The Journal of Participatory Medicine has just published a Media Watch piece about a new initiative from the California HealthCare Foundation called Team Up for Health. This website is a good example of an online tool that helps primary care providers support patients...
by e-Patient Dave | Aug 17, 2011
I’m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It’s like we’ve been ships in the night – not crossing...
by Kathleen O'Malley | Aug 16, 2011
The Journal of Participatory Medicine has just published a review of “Out of Her Mind: Women Writing on Madness.” Writer Meredith Linden, who lives with bipolar disorder, describes how the selections in this book can help validate people struggling with...
by Kathleen O'Malley | Aug 9, 2011
Social media is well established in our society and it shows much promise as a tool of patient-physician communication. But despite some cases of good and enriching rapport between patients and physicians in social media, the medical world, on the whole, is still...
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