Shared Decision Making in the News
Media coverage of the challenges we face in making good treatment decisions often focuses on and sensationalizes medical errors, catastrophes and risks. So it was great to see this impressive TV news clip circulated by Gary Schwitzer of HealthNewsReview.org in his...BMJ posts expert roundtable audio on Salzburg Statement and Shared Decision Making
The BMJ (British Medical Journal) has posted a three-part downloadable podcast about the Salzburg Statement. Part 1: History and current status of shared decision making. [26:04] Part 2: Vision of the future, and barriers to getting there. [23:31] Part 3: Informed...The Salzburg Statement on Shared Decision Making
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared...Practice variation and shared decision making on CBS Evening News
In December we posted about practice variation and shared decision making (SDM), a field of research originated at Dartmouth decades ago and best known as publisher of the Dartmouth Atlas, which describes the amazing amount of unexplained variation in how many doctors...
Shared Decision Making: Informed Consent v. Informed Choice
This guest post, presenting the view point of Howard Luks ( @hjluks on Twitter). Howard is an orthopedic surgeon. He serves as the Chief of Sports Medicine, Arthroscopy and Knee Replacement at Westchester Medical Center, in Westchester County, NY. Asked about...
Shared Decision-making: Becoming a Better Advocate for your Healthcare
I have a confession to make: I’m not always an effective advocate for my own care. It’s probably helpful for me to put this into context. I have been working in and around healthcare organizations for more than 25 years. I’m a researcher by trade, and worked with...
The process of shared decision-making: What it is, when it’s not, and what it should be
This is a guest post by SPM member, heart patient and author Elizabeth Rankin, BScN. Some background: one of the most-discussed topics on our blog is shared decision-making (SDM), with pages and pages of posts (75 in the category), dating back to 2010’s Salzburg...
Introducing the Patient-Centered Clinical Decision Support-Learning Network
Introduction SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network: Patient Expertise: Sharing and informing choices to connect research and clinical experience. Patient expertise...On Making Patient Reviews of Physicians More Useful
I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The...Zack Berger from #MedX on uncertainty and decision aids
Regular readers may recall SPM member Zack Berger MD PhD’s July post here The pledge of the patient-centered physician. Zack is one of the many SPM members attending the Stanford Medicine X conference this weekend and sends this Saturday night report,...Researcher seeks patient input: what should a stent decision aid include?
Preface by e-Patient Dave: We have often written here (see posts) about Shared Decision Making, in which patients are engaged in choosing among treatment options. A key method is to give patients a “decision aid” (DA) – a document or video that...When Bad Heads Go Viral: How A Malformed Headline Is Skewing Medicine’s View Of The Patient’s Role In Decisions
See my post about this on Forbes. This is as close as a call to arms as we ever get around here, given how collaborative we are. But this is a case of bad science and/or bad reporting, with clear harm to the participatory medicine movement. Whatever the reason, it...PCORI and Just-in-Time Decisions
SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make...Your Medical Mind: New book on *your* medical decision making process
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new...Salzburg Global Seminar, December 2010: Informing and Involving Patients in Medical Decision Making
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
Participatory Medicine in Pinstripes: What Baseball Can Teach Doctors
Baseball, like medicine, is deeply imbued with a sense of tradition, and no team more so than the New York Yankees, disdainful of innovations like placing players’ names on the backs of their jerseys and resistant to eroding strict standards related to haircuts and...
Mighty Casey is entering hospice
Update 3/19: We’ve opened a CaringBridge page for Casey, where her support team will post updates. You can subscribe to get notifications and to leave words of support, memories, etc. Anyone can view; posting requires free registration. This news hit us worse...
Building Us Up, Not Tearing Us Down
“Lack of effort and persistence” Those words cut like a knife, leaving a deeper wound than any facet of illness my daughter has faced. A provider used those words to describe my 19-year-old daughter Sara, who has lived her entire life with chronic complex medical...
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