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PCORI Workshop post 1: Kelly Young (@RAWarrior)

As noted in today’s earlier post, we’re starting a series of posts by SPM members who participated in last weekend’s PCORI workshop. Kelly Young (@RAWarrior) is one of the smartest e-patients I’ve ever seen anywhere. Aside from her technical...

Jessie Christine Gruman, 1953-2014

I’m saddened (really saddened, as I write this) to report that one of the titans of our movement, Jessie Gruman, died unexpectedly yesterday at home in New York. She had long been sick, but the demise was sudden. In addition to the mountain of work she produced...
Why Dying is Not Giving Up

Why Dying is Not Giving Up

Throughout my time as a psychotherapist specializing in end of life diseases, primarily cancer, I have spent many hours talking with both patients and medical teams about the importance of authentic communication and end of life planning. I see this kind of planning...

Recruit doctors. Let e-patients lead. Go mobile.

The Health 2.0 conference was an opportunity to learn about an amazing array of emerging technologies and, for me, to connect them to a bigger vision of what’s happened and what’s next. Here is the text of my remarks, annotated with as many links as I can...

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