by Kathleen O'Malley | Sep 9, 2011
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and...
by e-Patient Dave | Sep 2, 2011
Today I heard from a friend who’s had a tumor discovered. S/he decided to fire the current doctor, who would not return phone messages and was “intellectually lazy” – not interested in pursuing ideas my friend brought up that might require some...
by e-Patient Dave | Jul 15, 2011
“Health is social,” says SPM member Phil Baumann, RN (@PhilBaumann) at HealthIsSocial.com. Slate has a dramatic story of how a mother’s Facebook network helped spot – rapidly – Kawasaki Disease, a rare auto-immune disease that the...
by Susannah Fox | Jun 17, 2011
Treat yourself to 3 minutes of Don Berwick’s 2009 speech on patient-centered care, which at a certain point becomes an elegy: Now cheer yourself up with the latest article from the Journal of Participatory Medicine: “The Cancer Supportive Care Model: A...
by Kathleen O'Malley | Jun 16, 2011
Guest blogger Meredith Gould is on Twitter as @meredithgould and @HealthFaith. Over a year ago, I agreed to write about my personal experience with fibromyalgia for a new health and wellness site. The piece wasn’t going to be published for a while and although I...
by e-Patient Dave | Apr 18, 2011
Two years ago we wrote “Let’s hear it for the ‘d-patients'” — doctors who become e-patients themselves. We said “D-patients prove that patient empowerment is anything but anti-doctor. Heck, sometimes it’s a doctor preservation...
by e-Patient Dave | Apr 10, 2011
Joe and Terry Graedon, long-time friends of “Doc Tom” Ferguson, produce The People’s Pharmacy, a website and radio program on NPR. Last Saturday’s program was about the Society for Participatory Medicine, which they helped to found in 2009....
by e-Patient Dave | Mar 1, 2011
This is an unusual contribution in our series Why I Joined. As we’ve observed (August 2008, February 2009, February 2011) that language can be important in social movements, because as words change their meaning, messages can get crossed, and what a speaker...
by e-Patient Dave | Dec 1, 2010
Social media brings unexpected connections, which lets us combine thoughts and forces. This summer we connected with “Rheumatoid Arthritis Warrior” Kelly Young (see her great post here, Learning to use my mother-of-a-patient voice), which led to being...
by e-Patient Dave | Oct 27, 2010
Update Jan. 18: the video has just been released – see it at the bottom of this post. TEDMED is a truly extraordinary conference in San Diego, a fall sibling of TED talks focused on medicine. TED talks are just 18 minutes long, chosen and designed to blow your...
by Jon Lebkowsky | Oct 12, 2010
This is e-Patients.net’s first opportunity to host Grand Rounds, which is a collection of some of the medical blogosphere’s best writing over the last week. We asked bloggers to look at our sister website, the peer-reviewed Journal of Participatory...
by e-Patient Dave | Sep 17, 2010
One of the essential enablers of participatory medicine is that the internet brings patients together with information and with each other. Sometimes those connections seem improbable, such as when an acute cancer patient finds much in common with patients who have a...
by John M. Grohol, Psy.D. | Sep 1, 2010
A friend of mine, Ms. S., recently had an unsettling experience with a company called Caremark (the parent company of pharmacy CVS), whom she fills her prescriptions through. She was reordering a prescription refill she buys through the mail, and needed to pay for it....
by e-Patient Dave | Jun 21, 2010
Paul Roemer (LinkedIn, Twitter ) is speaking this Thursday at Health 2.0 in Bethesda. He’s a Twitter friend who has a lot in common with me: a cancer kicker with a business background, who now sees himself as an e-patient. There’s one big difference: he went...
by e-Patient Dave | Jun 7, 2010
Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly...
by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by e-Patient Dave | May 22, 2010
Meet Donna Cryer – another person who was an e-patient before she ever heard the word. (Weren’t we all?) As with Diane Engelman’s “mama lion” story this week, we connected with Donna through the internet. I heard her speak last month at...
by e-Patient Dave | May 18, 2010
Through the magic of Google Alerts, Diane Engelman recently learned of this blog. She’s one heck of an e-patient, though until now she’d never heard the word. That proves patient empowerment is a real trend, driven by a powerful force: the desire to help...
by Susannah Fox | May 13, 2010
Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the...
by e-Patient Dave | Apr 15, 2010
We’ve talked in the past about “d-patients” – doctors who become e-patients themselves. Our own founder Tom Ferguson MD was one. “D-patients” are a special case that proves, once and for all, that being an e-patient has nothing to...
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