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How I became an e-patient: through practice, with coaching (using Lean on the patient side)

by e-Patient Dave | Mar 29, 2016

The next in our series of “How I became an e-patient” posts. Tyson Ortiz joined a few months ago, having been introduced to us by fellow Lean practitioner Mark Graban. His story weaves together two concurrent threads: learning about a new aspect of Lean,...

Astounding #RareDisease e-patient story: Jill Viles, via @SusannahFox tweets

by e-Patient Dave | Jan 18, 2016

Longtime readers of this blog know that for years Susannah Fox was its heart and soul. She was a devoted friend of “Doc Tom” Ferguson, creator of the e-patient concept in the 1990s, and for years at Pew Research she was the dependable guru of Pew’s...

Forbes article featuring Carol Gunn: One Doctor’s Quest To End The Plague Of Screwed-Up Medical Diagnoses

by Ileana Balcu | Dec 2, 2015

Carol Gunn, an SPM physician member, was featured in a Forbes article about her sister’s misdiagnosis, and her mission after her sister’s death. Carol’s tips for patients to avoid being victims of diagnostic mistakes: Tip #1: Get a second opinion...

On Making Patient Reviews of Physicians More Useful

by David Harlow | Jun 27, 2015

I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The...

Guest post by Duncan Cross: I Sent This Letter To A Doctor Who Pissed Me Off

by Ileana Balcu | Jun 3, 2015

Ordinarily we limit guest posts to current members of SPM, but this is an extraordinary case. Duncan Cross’s post illustrates so many aspects of how empowered, engaged, activated patients view their lives, and how important it is to have an effective...

Guest post by Annette McKinnon: Power Equality: Why Is My Silo Two Miles Away?

by Ileana Balcu | May 11, 2015

This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid...