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We’re quoted in PBS Newshour online

Our Susannah Fox (and her research) are quoted in a piece yesterday on PBS Newshour’s online  edition about the HealthCare.gov insurance research site. There’s also a small quote from me.  

Maggie Mahar on Doctors & Patients Sharing Information

Prolific, unsinkable Maggie Mahar commented today on the Century Foundation’s HealthBeat blog about Paul Levy’s “Yes, Patients Can Help Their Doctors” introduction to my forthcoming book. Among other things she pointed out, correctly, that not...

Chilmark: “Where is the consumer in HIEs?”

As we adopt new technology NOW is the time to think strategically: “As I make my next move, where do I end up? How am I positioned for the next step?” Patients have a lot at stake in adoption of Health Information Exchanges (HIEs). Chilmark Research has...

Nice summary of definitions of “Health 2.0” etc

Tom Van De Belt @Tom_Zorg20, Lucien Engelen @Zorg20 and others have published a nice “line in the sand” article in JIMR (the Journal of Internet Medical Research), surveying the scientific and “gray” (Web) literature to collect definitions of...

Gov 2.0 Expo: Health Geek Guide

The cross-disciplinary smorgasbord that is Gov 2.0 Expo will be held this week in DC.  The agenda is packed with nerdy temptations (danah boyd! Anil Dash! Tim Berners-Lee!) but here are my can’t-miss sessions. Apps for America Contest Winners – Clay...

Patients Like Me beats Lancet Neurology by a mile

Patient networks for the win! MIT Technology Review: “Earlier this month, the journal Lancet Neurology published a study showing that the generic drug lithium did nothing to slow the course of ALS … Eighteen months earlier, PatientsLikeMe, a for-profit...

Society’s ICSI keynote makes front page of Star-Tribune

The front page of Friday’s Minneapolis Star Tribune has  coverage of the keynote address I was privileged to deliver on May 5 at the 13th Annual Colloquium of ICSI (Institute for Clinical Systems Improvement) and IHI (Institute for Healthcare Improvement). The...

Teaching HIPAA with a Seinfeld clip

On my personal website I posted a HIPAA clarification flyer that I made up: “It’s your medical record. You have a right to it. It’s the law.” The PDF links to a Seinfeld clip from 1996 – the year HIPAA was passed.  

E-Patient Erin Proves a Point

Erin Turner recently wrote: When I arrived at the Mayo Clinic in Rochester, Minnesota a few weeks ago, I was asked: “Who referred you to us?” My answer was not traditional: “Twitter.” (Read her full story on the SpectrumScience blog. And take...

Pay me now or pay me later.

Alfred Sommer’s Washington Post column: “Tragedy of individual Haitians risks overshadowing chronic health problems” gets to the heart of the power of public health, communications, and the personal choices which make a difference in our lives....

Stupid Cancer Show

Listen in at 9pm Eastern on Monday, 12/14, to The Stupid Cancer Show.  Host Matthew Zachary will interview Edward Shin, MD, founder of Healogica, Inc., Jane Sarasohn-Kahn, a health economist and blogger, and… me!  

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