by e-Patient Dave | Nov 29, 2010
Ted Eytan drew our attention to a real-time example of participatory thinking, in the case of his friend Matt, an engineer who’s recently been diagnosed with MS. His post This is what $8,000 worth of drugs looks like tells the story, including videos of two...
by Susannah Fox | Nov 22, 2010
My research findings and their connection with real-life health care were given new life when I discussed them with Lisa Gualtieri, Josh Bernoff, Tim Edgar, and the audience at the Connected Health symposium. If you’re intrigued, watch a video of the panel and...
by e-Patient Dave | Nov 12, 2010
Last week, the morning after the mid-term elections, the Disruptive Women in Health Care blog co-hosted an event at the National Press Club to discuss the election’s impact on health reform. They’ve just posted the video of the first hour’s panel,...
by Jon Lebkowsky | Oct 22, 2010
Texas Tribune interviewed Dr. David Blumenthal, National Coordinator of Health Information Technology, for a discussion of healthcare digital convergence (i.e. transition to electronic/digital healthcare records) and the potential impact on patient privacy. He’s...
by Gilles Frydman | Oct 11, 2010
I chose Lawrence Green’s article “The Field-Building Role of a Journal About Participatory Medicine and Health, and the Evidence Needed” for the Participatory Medicine Grand Rounds, because it addresses the issues at the heart of the deep impact of...
by Susannah Fox | Oct 11, 2010
For this Grand Rounds, I chose David C. Kibbe & Joseph C. Kvedar’s article, “Building a Research Agenda for Participatory Medicine” (JoPM, Vol. 1, 2009). I will highlight two of their “ready-to-go” research questions: What is the role...
by e-Patient Dave | Oct 6, 2010
Later this month something’s coming that I have a suspicion will be wonderful. Carlos Rizo of Toronto’s Health Strategy Innovation Cell tipped me off to this October 20 webcast: The Ontario Hospital Association (OHA) and the Health Strategy Innovation Cell...
by e-Patient Dave | Oct 2, 2010
My mom shot me a note today about this cover story in the new Reader’s Digest. Unhappy reading but good patient education. Cites some familiar names, e.g. Peter Pronovost and Robert Wachter. It’s good to see “wake up” messages in the mass...
by Susannah Fox | Sep 29, 2010
Kevin Kruse and his team have put together another incredible event in Philadelphia: e-Patient Connections 2010. Follow the tweets by searching for #epatcon or read the excellent summaries being written in real-time by Leigh Householder and Seth Quillin on the blog...
by e-Patient Dave | Sep 27, 2010
Jessie Gruman, PhD, Co-Editor-in-Chief of our Journal of Participatory Medicine, underwent surgery today in New York to address the fourth cancer-related diagnosis of her life. Today she released a blog post about it. Jessie has been a natural choice to co-lead our...
by e-Patient Dave | Sep 24, 2010
Pathways, a Scientific American magazine, has a long new article The Rise of the Empowered Patient. It quotes, among others, our friend Lucien Engelen (@Zorg20, which is Dutch for Health 2.0). I’m starting an all day meeting so I can’t absorb yet –...
by Susannah Fox | Sep 15, 2010
The video of my Mayo Transform 2010 speech, The Power of Mobile, is now up on the conference site as well as on YouTube. It was an honor to be part of this event. Many thanks to David Rosenman and his team for inviting me!
by e-Patient Dave | Sep 14, 2010
On Monday NPR’s Scott Hensley posted: “Between the Internet and all the data insurance companies and the government collect on doctors, you’d think it would be a lot easier than it used to be to find a good one. But it’s not.” Sound...
by e-Patient Dave | Sep 9, 2010
The Running A Hospital blog has another discussion of dealing with medical error. This time, the hospital has opened up an error of its own (a wrong side surgery) for examination by the Open School of the Institute for Healthcare Improvement. Sample comments: From...
by John M. Grohol, Psy.D. | Sep 7, 2010
The Boston Globe has a revealing article about a study published in Annals of Internal Medicine where patients thought that a heart stent would help prevent another heart attack. But doctors had only told patients that it would relieve future chest pain. How can such...
by e-Patient Dave | Sep 1, 2010
Claudia Williams at ONC has job openings for “a couple of talented folks” to add to the high-energy team, to work on State HIE. Details: (HIE is Heath Information Exchange. The State HIE program is described here.) Claudia says:...
by e-Patient Dave | Aug 24, 2010
Fascinating post by Louis Gray, reflecting on the transient nature of much of social media.
by e-Patient Dave | Aug 23, 2010
Trisha Torrey sums it up niftily on her Patient Empowerment Blog at About.com.
by Jon Lebkowsky | Aug 19, 2010
Howard Rheingold has shared video of a backyard discussion he had with technology pioneers Doug Engelbart and Ted Nelson when they dropped by for dinner, along with Howard’s wife Judy and Nelson’s wife Marlene Mallicoat. Brief but intense discussion of the...
by Susannah Fox | Aug 9, 2010
If you haven’t listened to the Patient Voices series on The New York Times site, let me be the first to recommend it. I spend quite a bit of time writing up survey data, working with moderately large respondent pools (N=2,253 is the number of people who...
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