by Jessie Gruman | Jun 13, 2011
Through Facebook and a Caringbridge blog, twenty-six year old Justin Anderson drew friends, family, and now the public into his experience after being diagnosed with brain cancer. His last post in the article is an update from Mount Everest, his latest feat after...
by e-Patient Dave | Jun 4, 2011
John Moore at Chilmark Research has published another of his characteristically useful and insightful updates on health IT as he sees it. It’s here. A word about Chilmark: when I was considering how to make a new career, in healthcare, I noticed a gaping hole in...
by e-Patient Dave | Jun 3, 2011
SPM member Sue Woods, of Oregon Health and Science University and the Veterans’ Administration, has posted a terrific response to CNN.com’s “Ten dumb things you do at the doctor’s office” and to our discussion of it here. Titled Dumb...
by e-Patient Dave | May 24, 2011
One of the first posts on this blog that got wider attention was in March 2009: RateMDs.com: Medical Justice’s approach is “repulsive”: …a company called Medical Justice wants to help doctors avoid consumer ratings, by getting patients to sign an agreement...
by e-Patient Dave | Apr 27, 2011
My friend Dorron Levy, who lives near Tel Aviv, alerted me to this blog post in Hebrew; Google’s English translation here. It starts with CNN’s Empowered Patient reporter Elizabeth Cohen, and moves on to discuss a recent conference organized by the...
by Jon Lebkowsky | Apr 21, 2011
Economist Paul Krugman, blogging at the New York Times, argues that patients should not be referred to as “consumers.” Krugman says “The idea that all this can be reduced to money — that doctors are just people selling services to consumers of health...
by Susannah Fox | Apr 13, 2011
I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health...
by Susannah Fox | Apr 11, 2011
PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing...
by e-Patient Dave | Mar 22, 2011
There’s so much going on health IT these days, it’ll make your head spin. Fortunately, it appears a bang-up good job is being done by the health IT team at HHS and the implementers they’re working with. Example of “head spin” and...
by John M. Grohol, Psy.D. | Mar 16, 2011
As a reminder that even the best technology still relies on humans not making dumb mistakes, PCMag.com reports that Health Net’s technology partner, IBM, has seemingly lost a few hard drives. Normally not a big deal. Except that these drives contained patient...
by e-Patient Dave | Mar 1, 2011
Noted patient activist Dale Ann Micalizzi, founder of Justin’s HOPE (blog), has just been named co-chair of the 2011 Forum of the Institute of Healthcare Improvement (IHI). The IHI Forum is a major international healthcare event, with over 5,000 people attending...
by e-Patient Dave | Feb 24, 2011
EMR and HIPAA is a great blog about health IT technology – well written, thoughtful, with personality. But I disagreed today with a post about the huge HIMSS conference (Health Information Management Systems Society) that ends today in Orlando. John wrote that...
by e-Patient Dave | Feb 23, 2011
ABCNews.com has posted a great new piece by Roni Zeiger MD, “The Biggest Wasted Resource in Health Care? You.” Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It’s well reasoned and clearly written, and continues the...
by e-Patient Dave | Feb 18, 2011
The Institute for Healthcare Improvement (IHI) has generously released the session video of the keynote that SPM president Dr. Danny Sands and I delivered at the IHI’s annual Forum in December. At this event the IHI did two extraordinary patient-oriented things:...
by e-Patient Dave | Jan 22, 2011
I have a Google Alert for “e-patient,” and sometimes I’m surprised what it catches. Tonight it was this: 3 Reasons Steve Jobs Will Be The Ultimate e-Patient Steve Jobs’ medical leave sets the stage for the upcoming revolution in the production...
by Jon Lebkowsky | Jan 17, 2011
The Robert Wood Johnson Foundation, sponsor of the e-Patients White Paper that was the genesis of this blog and the Society for Participatory Medicine, is sponsoring a partnership of the Institute for the Future and The Quantified Self to build a The Complete Guide to...
by Jon Lebkowsky | Jan 11, 2011
According to Reuters, physicians often base treatments on expert opinion or anecdotal evidence. Only one in seven treatment recommendations from the Infectious Diseases Society of America (IDSA) — a society representing healthcare providers and researchers...
by e-Patient Dave | Jan 7, 2011
Thanks to a tweet by @AndrewSpong during this morning’s #hcsmeu Twitter chat, I was reminded that Wikipedia has an “e-patient” entry.
by Jon Lebkowsky | Jan 3, 2011
From Kathleen O’Malley, managing editor of The Journal of Participatory Medicine: We’ve got some good intellectual exchanges going on at The Journal of Participatory Medicine. The three latest Commentaries we posted have garnered several worthwhile...
by e-Patient Dave | Jan 3, 2011
For those who believe in the power of facts, some wonderful news from CMIO, 12/15/10: “Six of the nation’s leading healthcare systems — Cleveland Clinic, Dartmouth-Hitchcock, Denver Health, Geisinger Health System, Intermountain Healthcare and Mayo Clinic...
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