by e-Patient Dave | Apr 13, 2015 |
Friday evening I got a tweet from SPM member Sherry Reynolds about something that had just happened in Washington. Today it unfolded. (Don’t miss her comment, too, about the history of this issue and her role in it.) Change can provoke upset. Technological...
by e-Patient Dave | Apr 10, 2015 |
Perhaps it’s time for an argument about how we’re doing this. Many of us in the Society for Participatory Medicine have long noted that what we’re up to here is nothing less than full-bore culture change. In my own speeches I often note that culture...
by e-Patient Dave | Apr 8, 2015 |
National Survey Also Shows 87% Think Health Information Exchange Should be Free First paragraph updated next day In case you missed it last month, there was an unprecedented, huge moment in SPM’s history – we collaborated in a national survey of...
by e-Patient Dave | Feb 17, 2015 |
Dr. Donald Lindberg, long-time director of the National Library of Medicine, is surely the single most-quoted authority from “Doc Tom” Ferguson’s e-Patient White Paper. In almost every speech I’ve given in the past five years I’ve used...
by e-Patient Dave | Feb 11, 2015 |
This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal)...
by Nick Dawson | Jan 31, 2015 |
Last Friday, 200 patients, advocates, scientists, doctors and researchers gathered at the White House to hear President Obama’s launch of the Precision Medicine Initiative. According to the President, precision medicine...
by e-Patient Dave | Dec 3, 2014 |
Edited an hour later – added Business Impact section at end Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we...
by Ileana Balcu | Oct 22, 2014 |
Wikipedia says “Participatory medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as full partners.” That movement gets a big boost in...
by Michael Millenson | Jun 16, 2014 |
The founders of SPM were saddened this weekend to learn of the death, in a private plane crash, of Richard Rockefeller, longtime friend of “Doc Tom” Ferguson. Rockefeller was credited in Ferguson’s white paper as “a White Paper Advisor.”...
by e-Patient Dave | Jun 10, 2014 |
Regular readers know that this blog has long advocated for patient access to, and engagement with, the medical record. In the past 2-3 years we’ve especially advocated for OpenNotes, in which patients can see their primary’s actual visit notes. At my...
Turning Pain into Power through AdvocacyJuly 12, 2022
Urgent – comment TODAY: stop this CMS rule change that suppresses hospital safety dataJune 17, 2022
Collaborative Notes, Engaged Partners, Fewer ErrorsJune 13, 2022
Creating Your Own Self-Advocacy StyleMay 5, 2022
Tell Me Your Story: How Narrative Medicine Fosters TrustApril 27, 2022
Recent Comments