by e-Patient Dave | Jan 30, 2012
Well, SPM’s resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR’s On The Media on 1/20, and now he’s on the...
by e-Patient Dave | Jan 19, 2012
It’s one thing when we “talk amongst ourselves” in our own circles; it’s a whole different thing when the message starts popping up in *mass media*, where it reaches people who had no idea. So it’s big news that we’ve had TWO...
by e-Patient Dave | Dec 20, 2011
This post contains street language about body parts, harvested from Twitter last night with Xeni’s permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist...
by e-Patient Dave | Dec 14, 2011
I’m no expert on the FDA but my science antennas are twitching nervously about this, so I’ll post and invite discussion. In a surprising move last week, President Obama and HHS Secretary Sebelius overrules (basically, vetoed) the FDA’s recommendation...
by John M. Grohol, Psy.D. | Oct 23, 2011
The 60 minutes interview with Steve Jobs’ biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the interview for me was watching Walter Isaacson, a former editor of...
by John M. Grohol, Psy.D. | Oct 16, 2011
Please join us for the 2nd Annual Society for Participatory Medicine Cocktail Reception, taking place on Thursday, October 20, 2011 at the Liberty Hotel in Boston (http://www.libertyhotel.com/) from 6:00 – 8:00 pm. If you’re attending the Connected Health...
by e-Patient Dave | Sep 1, 2011
Big news from Down Under: the Sydney Morning Herald reports that a group of fifty consumer health advocates has unanimously backed an “opt-out” process for enrollment in electronic health records, reversing their previous position. The issue is whether by...
by John M. Grohol, Psy.D. | Jul 24, 2011
I’m all for citizen journalism, and can even stand the content mills like LiveStrong, who have pimped out their name and brand in order to make a quick buck. But I draw the line with bad reporting and worse, biased representation of the data to prove a point....
by e-Patient Dave | Jul 2, 2011
For those who like to look deep into the structure and causes of change, something fun is in process: an interview with Vint Cerf, with an explicit e-patient component. Cerf is acknowledged as one of the fathers of the internet. In my lifetime few people, if any, have...
by e-Patient Dave | Jun 30, 2011
Strictly speaking this isn’t about participatory medicine, but it is about being an empowered consumer of care. There are several dimensions to empowerment, including (but not limited to): Knowing what you want Recognizing whether you’re getting it When...
by John M. Grohol, Psy.D. | Jun 25, 2011
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its...
by e-Patient Dave | Jun 24, 2011
On this blog we try to understand and explain how the world has changed and is changing, with the goal of helping everyone – policy people, patients, clinicians, administrators, businesses – optimize for the world as it changes. Nowhere is that more...
by David Harlow | Apr 1, 2011
As you may know, the proposed Accountable Care Organization regulations were released yesterday. I’ve posted links to the various documents and some early news reports on my blog: Accountable care organization proposed regulations released for public comment. I’ll...
by e-Patient Dave | Feb 23, 2011
ABCNews.com has posted a great new piece by Roni Zeiger MD, “The Biggest Wasted Resource in Health Care? You.” Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It’s well reasoned and clearly written, and continues the...
by e-Patient Dave | Jan 29, 2011
We’ve recently been talking here about problems with poor study design in clinical trials. A health IT version of this problem raced through the newswires this week while I was on the road. The news coverage was particularly naïve, illustrating our point....
by e-Patient Dave | Jan 3, 2011
For those who believe in the power of facts, some wonderful news from CMIO, 12/15/10: “Six of the nation’s leading healthcare systems — Cleveland Clinic, Dartmouth-Hitchcock, Denver Health, Geisinger Health System, Intermountain Healthcare and Mayo Clinic...
by Peter Frishauf | Dec 3, 2010
(To help you visualize the scene, see the famous Coca-Cola Santa image. Now imagine Peter Frishauf asking Santa for that train set!) Dear Santa, I always believed in you Santa. All those kids who said it wasn’t true, you weren’t real, well guess what: I knew you were....
by Jon Lebkowsky | Oct 14, 2010
We welcome members to join us for the First Annual Society for Participatory Medicine Cocktail Reception taking place on Oct 19th at the Liberty Hotel (http://www.libertyhotel.com) from 6-8pm. We invite you to share your ideas and enjoy a wine bottle service, hors...
by e-Patient Dave | Oct 2, 2010
Elizabeth Cohen is surely the most visible spokesperson for patient empowerment, because she’s on CNN and CNN.com. She’s got an hour-long special on CNN this weekend. Highly recommended, especially for friends and family who don’t get what this is...
by e-Patient Dave | Jun 14, 2010
It’s widely rumored that a health IT industry executive was unhappy about suggestions that systems have to be usable in the eyes of employees who use them while caring for us. (Us. The patients. Your mother.) According to the rumor, the exec said “Over my...
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