by e-Patient Dave | Sep 29, 2011
Yesterday the New York Times reported that some health insurers have applied to regulatory agencies to push premiums sharply higher – usually double-digit increases, while citizens are suffering.  This falls on top of the 11 year history reported last year by...
by e-Patient Dave | Aug 23, 2011
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In...
by Kathleen O'Malley | Aug 16, 2011
The Journal of Participatory Medicine has just published a review of “Out of Her Mind: Women Writing on Madness.” Writer Meredith Linden, who lives with bipolar disorder, describes how the selections in this book can help validate people struggling with...
by Susannah Fox | Jul 15, 2011
Sachin Jain and John Rother’s JAMA commentary, “Are Patients Knights, Knaves, or Pawns?” is an article that begs to be shared. The first time I read it I had to stand up, I was so excited — how can I design a survey to capture these...
by David Harlow | Jul 10, 2011
The good people at GE and JESS3 have come up with an HAI infographic. It’s pretty, and it conveys the horrible information that many of us already know — healthcare associated infections kill about 100,000 people a year, and add $35 billion a year to our...
by e-Patient Dave | Jun 18, 2011
Engaged patients and families, alert: the NY Times reports (here) on a form of unwarranted practice variation that has been exposing elders to excess radiation. Many smaller hospitals have been needlessly exposing their Medicare patients to double CT scans on the same...
by e-Patient Dave | Jun 1, 2011
Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including: Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about...
by e-Patient Dave | May 29, 2011
Additions late 5/30/11: First, once again the comment discussion has colored some people’s view, including mine, of this discussion. That’s good. Second, in response to comments, I made a couple of edits, striking through the old text, and tonight I...
by e-Patient Dave | May 24, 2011
This isn’t directly involved with participatory medicine, unless you believe that a responsible patient wants to know the best way to do participatory health, and thus avoid the need for health care. Lower costs and keep your family out of the hospital –...
by David Harlow | May 3, 2011
We e-patients are an impatient lot, and therefore we may not be big fans of the Five-Year Plan approach to creating change. The Office of the National Coordinator for Health IT released a draft federal health IT strategic plan in late March, via blog post (the plan...
by David Harlow | Apr 1, 2011
As you may know, the proposed Accountable Care Organization regulations were released yesterday. I’ve posted links to the various documents and some early news reports on my blog: Accountable care organization proposed regulations released for public comment. I’ll...
by e-Patient Dave | Mar 22, 2011
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared...
by e-Patient Dave | Mar 22, 2011
There’s so much going on health IT these days, it’ll make your head spin. Fortunately, it appears a bang-up good job is being done by the health IT team at HHS and the implementers they’re working with. Example of “head spin” and...
by e-Patient Dave | Mar 20, 2011
Today’s post on Paul Levy’s blog led me back to this November post, where he posted this 35 minute lecture. I was going to write about the subject, embedding this at the end, but you have to absorb this first. Clinicians and patients alike, please watch. I...
by e-Patient Dave | Mar 16, 2011
Guest post by SPM member Regina Holliday. Perhaps because my world-view is shaped by the escapades and explanations of active little boys, I often speak of super-heroes in relation to health care. I listen daily to tales of poisonous spider bites, DNA mutations and...
by David Harlow | Feb 23, 2011
The Health Research Institute at PricewaterhouseCoopers released a report today entitled Putting patients into “meaningful use.” It begins with the anecdote I’ve blogged about previously regarding a diagnosis by Facebook in lieu of a PHR, which some...
by e-Patient Dave | Feb 22, 2011
Our next guest post from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family’s intense personal e-patient story from 2009. Gangadhar has responded to his experience by becoming participatory, even seeing where we need to participate in...
by David Harlow | Feb 16, 2011
There is a growing recognition within the medical-industrial complex that the patient is a key element of the enterprise, and that patient satisfaction, patient experience, patient engagement, patient activation, patient-centeredness are very important. Some research...
by e-Patient Dave | Jan 18, 2011
There are several stages in becoming an empowered, engaged, activated patient – a capable, responsible partner in getting good care for yourself, your family, whoever you’re caring for. One ingredient is to know what to expect, so you can tell when things...
by Susannah Fox | Nov 22, 2010
I have seen the future of health and it’s networks (with apologies to Lincoln Steffens). Chronic disease is exploding in the U.S. The number of primary care health professionals is declining. Behavior change is difficult. But what are we going to do about it?...
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