by e-Patient Dave | May 30, 2013
See my post about this on Forbes. This is as close as a call to arms as we ever get around here, given how collaborative we are. But this is a case of bad science and/or bad reporting, with clear harm to the participatory medicine movement. Whatever the reason, it...
by David Harlow | May 20, 2013
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is clearly trying to get the message out that radical choices must...
by John M. Grohol, Psy.D. | Apr 22, 2013
Imagine a black box. You can feed all sorts of information and data into it all the live long day. But the amount of data you can get out of it is limited. It just stares back at you with its blank, neutral sides. It can tell you things like where it was manufactured,...
by Danny van Leeuwen | Apr 11, 2013
Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between...
by Danny van Leeuwen | Feb 26, 2013
The overlap between the clinical aspects of our health journey and behavior of health team members occurs most often in medication management. Effective medication management depends on empowered, informed patients and caregivers prepared for clinician visits, and...
by e-Patient Dave | Jan 6, 2013
Addition Oct 2014: added link to the Reproducibility Initiative, now at validation.ScienceExchange.com Correction Monday morning: the project is called the Reproducibility Initiative, not Project. Also, note that we got a comment from co-founder Elizabeth Iorns...
by e-Patient Dave | Dec 30, 2012
SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make...
by e-Patient Dave | Dec 29, 2012
This encouraging news is adapted from the November cover story of Radboud University’s magazine Radbode (PDF, in Dutch, 1.6MB). Thanks to @LucienEngelen, initiator of this project, for forwarding it to us. Not surprisingly, Lucien’s also the creator of the...
by Kathleen O'Malley | Oct 25, 2012
Today’s guest blogger, author and SPM Secretary Nancy Finn, originally posted this essay on her personal blog. Care coordination requires that the right information reaches the right people within an optimal time frame, so that a patient’s full information...
by Kathleen O'Malley | Sep 27, 2012
This blogpost by Chuck Alston and Patrick McCabe originally appeared on the Health Affairs blog. Many thanks to SPM member Michael Millenson for alerting e-Patients.net to this piece. It has been 22 years since David M. Eddy — the heart surgeon turned...
by Kathleen O'Malley | Sep 26, 2012
Guest blogger Marya Zilberberg is the author of Between the Lines: Finding the Truth in Medical Literature. She originally posted this piece on her blog Healthcare, etc. I have been looking up information on endometriosis for a friend of mine, and came upon this from...
by Kathleen O'Malley | Sep 14, 2012
Guest blogger Susan R. Mende, BSN, is a senior program officer at the Robert Wood Johnson Foundation, the nation’s largest philanthropy devoted exclusively to health and health care. She is engaged in the Foundation’s efforts to help consumers take an active role in...
by Kathleen O'Malley | Sep 13, 2012
Guest blogger Nancy B. Finn is a writer and thought leader on the impact of digital communication on organizational behavior, health care, and patient care. When you go to the supermarket, it is fairly easy to make good choices about which cereal or fruit to purchase....
by Susan Woods | Aug 8, 2012
I’ve been in healthcare for awhile, yet must admit that a lot of information packaged for patients/consumers is pretty dry and not too creative. Content, often developed by health professionals or educators, can be medical-heavy and design-light. My litmus test when...
by Ileana Balcu | Aug 2, 2012
Another blog post from Eve Harris on KQED describing the use of medical assistant health coaches to help patients make and keep their health care goals. http://blogs.kqed.org/stateofhealth/2012/07/26/primary-care-efforts-to-involve-patients-in-decision-making/ Go Eve!...
by e-Patient Dave | Jul 28, 2012
What is the role of the patient? As we noted in April, TEDMED and the Robert Wood Johnson Foundation have designated “The Role of the Patient” as one of the twenty TEDMED Great Challenges for 2013, and the TEDMED site will host a big conversation about it...
by Ileana Balcu | Jul 24, 2012
Member Eve Harris wrote another great blog post for KQED – Public Media for Northern California. It is about one woman’s personal decision on how to treat her breast cancer. A short extract below: Basila is strong evidence that individuals react...
by e-Patient Dave | Jul 23, 2012
Last summer I visited Health Literacy Missouri, and summed up the great work I saw there in Clarity is Power. Today’s Boston Globe has another example – the illustration at right, what’s known as a decision aid, to help patients engage in making...
by Susannah Fox | May 31, 2012
J.R. Schmitt tipped me off to a fascinating article published in 1997 (!) about a “de-marketing strategy” for the use of general anesthesia in dentistry in the UK: De-marketing: Putting Kotler and Levy’s Ideas into Practice, by Steven Lawther, Gerard...
by Kathleen O'Malley | Apr 24, 2012
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence...
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