by e-Patient Dave | Apr 7, 2012
One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become “responsible drivers of their care, and providers welcome and value them as full partners,” patients participate in...
by Kathleen O'Malley | Mar 16, 2012
The Journal of Participatory Medicine has published “An Introduction to Self-Care,” a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her...
by Kathleen O'Malley | Feb 13, 2012
We encourage our readers to attend this February 27 event and help PCORI shape its agenda for clinical effectiveness research. You can find a link to their draft priorities by clicking to this page. Registration for the forum is required; please see the link in the...
by Kathleen O'Malley | Jan 19, 2012
Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author’s blog,...
by e-Patient Dave | Jan 10, 2012
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
by Susannah Fox | Dec 8, 2011
Here’s a question which inspired me today, received via email from Christie Silbajoris, director of NC Health Info: My library is rethinking its provision of services to the public. We’ve got a history of going beyond what the average academic health sciences...
by e-Patient Dave | Nov 28, 2011
The excellent ICMCC daily newsletter just alerted me to this item from Permanente Journal:Â Interview with Lawrence Weed, MD —Â The Father of the Problem-Oriented Medical Record Looks Ahead. I hope to absorb it in the next day or two, and I invite people who know...
by Kathleen O'Malley | Nov 11, 2011
This guest post by Kari Ulrich, RN, originally appeared in a fibromuscular dysplasia e-patients’ blog. The November 2011 issue of Reader’s Digest reads in big, bold print, “50 Secrets Nurses Won’t Tell You.” Articles like this create fear...
by e-Patient Dave | Nov 2, 2011
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction....
by e-Patient Dave | Sep 23, 2011
In the past year I’ve come to see medical decision making as one of the key crucibles in which participatory medicine plays out. We’ve blogged several times about shared decision making (SDM), and by its nature it requires participatory thinking. A new...
by Kathleen O'Malley | Sep 9, 2011
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and...
by e-Patient Dave | Aug 23, 2011
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In...
by e-Patient Dave | Jul 26, 2011
Now up on YouTube: You, the patient, are a vital component of medical decision making. Believe it or not, it’s worth your effort to find out about your treatment options! This informal FlipCam vignette models a physician encouraging the patient to ask:...
by Jessie Gruman | Jun 28, 2011
Media coverage of the challenges we face in making good treatment decisions often focuses on and sensationalizes medical errors, catastrophes and risks. So it was great to see this impressive TV news clip circulated by Gary Schwitzer of HealthNewsReview.org in his...
by e-Patient Dave | Jun 18, 2011
Engaged patients and families, alert: the NY Times reports (here) on a form of unwarranted practice variation that has been exposing elders to excess radiation. Many smaller hospitals have been needlessly exposing their Medicare patients to double CT scans on the same...
by Kathleen O'Malley | Jun 14, 2011
This guest post by SPM member Ellen Hoenig Carlson was inspired by a study on the prevalence of medical errors, published in the April issue of Health Affairs. Medical errors are one of the nation’s leading causes of death and injury. The famed 1999 Institute of...
by e-Patient Dave | Apr 6, 2011
The BMJ (British Medical Journal) has posted a three-part downloadable podcast about the Salzburg Statement. Part 1: History and current status of shared decision making. [26:04] Part 2: Vision of the future, and barriers to getting there. [23:31] Part 3: Informed...
by David Harlow | Apr 1, 2011
As you may know, the proposed Accountable Care Organization regulations were released yesterday. I’ve posted links to the various documents and some early news reports on my blog: Accountable care organization proposed regulations released for public comment. I’ll...
by e-Patient Dave | Mar 22, 2011
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared...
by e-Patient Dave | Mar 20, 2011
Today’s post on Paul Levy’s blog led me back to this November post, where he posted this 35 minute lecture. I was going to write about the subject, embedding this at the end, but you have to absorb this first. Clinicians and patients alike, please watch. I...
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