by e-Patient Dave | Jan 26, 2020 |
Many people are asking if they can add their stories or their signatures. Please do so in comments! We’ll copy signatures into the body of the post as time allows. We, the undersigned, are patients, family caregivers and advocates who are desperate to receive... 
by e-Patient Dave | Nov 19, 2019 |
I’ve just discovered something I’ve long hoped to see: a training module to teach medical students about e-patients and how to interact with them! It’s a paper in the journal Medical Teacher: “But Dr Google said…” – Training medical students how to... 
by e-Patient Dave | Sep 9, 2019 |
Our Society’s 2nd Annual “Doc Tom” Awards are now open for nominations! Spread the word, and join us at our annual conference on October 15 for the announcement of our award recipients! Doc Tom Ferguson was the founder of the e-patient movement. To promote his values,... 
by e-Patient Dave | Apr 11, 2019 |
What if you hired a financial manager to handle your money – a trusted professional, like that guy above – then discovered they didn’t know what they were doing, and your records were a mess? How would you feel? That’s pretty much what happened... 
by e-Patient Dave | Apr 10, 2019 |
It’s a big anniversary, this spring – this week, even. Ten years ago the whole issue of personal health data exploded into the headlines. It was about something I wrote here, not having a clue it was any kind of a big thing, but it ended up on the front... 
by e-Patient Dave | Feb 21, 2019 |
The famous TED Talks site TED.com is the holy grail of many evangelists. Aside from the extraordinary visibility it gives your message, and aside from the validation of your message (the site’s tagline is “Ideas worth spreading”), it means... by e-Patient Dave | Jan 7, 2019 |
On Facebook last Friday our member Carla Berg Nelson posted briefly about a new Psychology Today blog post, Data: the New Window into Humanity, by John Nosta. She tagged a number of other members (and non). I know and respect Nosta from his days creating a LinkedIn... 
by Casey Quinlan | Nov 16, 2018 |
SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here’s the full version of the... 
by Casey Quinlan | Oct 20, 2018 |
This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to... 
by e-Patient Dave | Oct 15, 2018 |
Here’s the last in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Last chance: register here....
Web introduction to a crowd-sourcing platform for COVID-19 “information therapy”March 19, 2020
COVID-19 information resources: Peter Elias MD and othersMarch 17, 2020
Long-awaited US rules on data access and information blocking are outMarch 9, 2020
Three minute patient video nails the suffering from information blockingMarch 9, 2020
“Help me see the dragon I’m slaying”: pathologists meeting directly with patientsFebruary 28, 2020
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