by Casey Quinlan | Nov 16, 2018
SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here’s the full version of the...
by Casey Quinlan | Oct 20, 2018
This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...
by e-Patient Dave | Oct 15, 2018
Here’s the last in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Last chance: register here....
by Casey Quinlan | Oct 13, 2018
If you’ve been paying attention, you know that yours truly got the chance to attend the annual Cochrane Colloquium in Edinburgh in September this year, thanks to a travel stipend from SPM, a #PatientsIncluded bursary from Cochrane UK, the hosts of the 2018...
by Casey Quinlan | Oct 6, 2018
Red Hot Chili Pipers at the Colloquium | image credit: Simon Williams Photography I won the big platinum #PatientsIncluded ring (much better than brass) this year with an opportunity to attend the Cochrane Colloquium, the global health science and health services...
by e-Patient Dave | Aug 7, 2018
Editor’s note: This is a guest post by SPM member Nancy Michaels. Members of our society are welcome to submit guest posts – see the guidelines. I remember when Mr. Rogers’ Neighborhood first aired on the Public Broadcasting System. In my mind, he...
by e-Patient Dave | Aug 3, 2018
It’s here: our Society’s new Doc Tom Awards are open for nominations! Spread the word, and join us at our second annual conference on October 17 for the award! If you don’t yet know about Doc Tom Ferguson, founder of the e-patient movement, read our...
by Michael Millenson | Jul 4, 2018
Originally published six years ago – as good as new today! The empowered patient, skeptical of professional authority, is not a new phenomenon: s/he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning...
by Michael Millenson | Jun 27, 2018
This is the second of two posts about this important policy issue regarding portability of our medical records. The first provided background, with link to a PDF of the comments SPM submitted, largely authored by Michael Millenson, who provides this essay for context....
by e-Patient Dave | Jun 27, 2018
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion’s share of this work, as noted below. Our Society’s Advocacy and Policy chair Vera Rulon...
by e-Patient Dave | Mar 6, 2018
UPDATE FOR ATTENDEES: Try to arrive 10 minutes early — 10:50 am — to get oriented. On arrival a host will scan your badge and point you to the big round “Discovery desk” where we’ll gather. We’ll talk a bit for 10 minutes, then...
by e-Patient Dave | Jan 17, 2018
This is a long overdue post of the next session from our Society’s first conference on October 25. The first keynote, about OpenNotes, was posted here, including this note: WOW was our Society’s first conference on October 25 a breakthrough event! Titled...
by e-Patient Dave | Jan 16, 2018
Guest post by SPM member Mark Sullivan, MD, PhD, who is Co-Director of Behavioral Health Services at the University of WashingtonCenter for Pain Relief. We welcome guest posts from SPM members – see guidelines here. I joined the Society for Participatory...
by e-Patient Dave | Nov 29, 2017
I’m way late in blogging this – too much travel and jet lag – but WOW was our Society’s first conference on October 25 a breakthrough event! Titled ““Participatory Medicine: Transforming the Culture of Care” (web page), it produced...
by Michael Millenson | Nov 15, 2017
Baseball, like medicine, is deeply imbued with a sense of tradition, and no team more so than the New York Yankees, disdainful of innovations like placing players’ names on the backs of their jerseys and resistant to eroding strict standards related to haircuts and...
by e-Patient Dave | Aug 7, 2017
“To help inform patients of the best scientific knowledge…” “…as future physicians, they realize that part of their contract with society is to meet patients where they are and to help inform patients of the best of scientific knowledge about...
by e-Patient Dave | Aug 3, 2017
I’m taking the extraordinary step of rerunning, verbatim, an entire post from 2014 about this important development. Why? Because tomorrow an update is coming, and to fully appreciate the news, you need to appreciate the background. Here’s the original,...
by e-Patient Dave | Jun 21, 2017
As his TEDMED profile says, Dr. Isaac (Zak) Kohane, MD, PhD, co-directs the Center for Biomedical Informatics at Harvard Medical School. He’s a long-time believer in the power of well managed information to help create well managed care. Many members of SPM got...
by Ileana Balcu | Jun 19, 2017
Lawrence “Larry” Weed (born December 1923, died June 3, 2017) was an American physician, researcher, educator, entrepreneur, and author, who is best known for creating the problem-oriented medical record as well as one of the first electronic health records....
by e-Patient Dave | Jun 7, 2017
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
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More important than Time and MoneyFebruary 5, 2025
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