by e-Patient Dave | Jan 14, 2013
The report was issued overnight – see Susannah’s post here about it, media coverage (via Google), and blogs. I’m stealing some Susannah Fox thunder here because I can’t wait, and you should carve out a spot in your calendar...
by e-Patient Dave | Nov 28, 2012
The PDF at right is a summary of sample data from this new dataset. The Leapfrog Group is a highly respected patient safety organization. They’ve earned a reputation for carefully and thoughtfully assessing providers’ actual performance in quality and...
by Susannah Fox | Nov 21, 2012
David Gorn, a reporter for California Healthline, contacted me after the release of the Pew Internet/California HealthCare Foundation’s Mobile Health 2012 report and asked if there were interesting findings on rural Americans. Indeed there are and I wish...
by Kathleen O'Malley | Oct 25, 2012
Today’s guest blogger, author and SPM Secretary Nancy Finn, originally posted this essay on her personal blog. Care coordination requires that the right information reaches the right people within an optimal time frame, so that a patient’s full information...
by e-Patient Dave | Oct 23, 2012
Quick, quick, do this now! Â Go add your signature to the hundreds who have already signed – this is about getting us access to our lab results, the same as any other health data! How important is this? Â Here’s a video of SPM member Ann Waldo discussing it...
by Susannah Fox | Oct 5, 2012
(A cross-post from susannahfox.com) I had the great honor of being part of the first Medicine X conference at Stanford University last weekend. I presented a sneak preview of new survey results collected by the Pew Internet Project and the California HealthCare...
by Susannah Fox | Sep 16, 2012
My schedule only allowed me to attend Day One of the fantastically rich Medicine 2.0 Congress being held this weekend in Boston. I thought I’d share my impressions and notes in case they spark inspiration for other people, as each presenter and hallway...
by Susannah Fox | Sep 7, 2012
I witnessed an intriguing Twitter conversation between Christy Collins and Greg Biggers about disease names, so I asked Christy to write up her thoughts. It is an honor to host this guest post: By Christy Collins When I started an advocacy and research organization...
by e-Patient Dave | Aug 24, 2012
Over on Mind The Gap, Steve Wilkins (Twitter) has a poster about patient engagement that annoyed me:-) right out of the box – because although I pretty much like everything he does, the poster starts with what I find to be the ouchiest mental disconnect in all...
by e-Patient Dave | Jul 31, 2012
As noted a few days ago, I’ve been at the ABIM Foundation Forum. This is, frankly, the most heartening event I’ve been to: the Foundation people are working hard to generate real transformation in the practice of medicine, including the new Choosing Wisely...
by Ileana Balcu | Jul 13, 2012
Thanks to member Marge Benham-Hutchins RN, PhD for sending us the link to this RWJF initiative http://www.rwjf.org/qualityequality/product.jsp?id=74596&cid=XEM_A6199 I especially liked this principle: This relationship [nurse-patient]Â is grounded in...
by Susannah Fox | Jul 12, 2012
A new Pew Internet/California HealthCare Foundation report is out today: Family Caregivers Online. I thought I’d give some background on why we did the study and a few key take-aways. Caregivers are alpha geeks of health care 30% of U.S. adults are currently...
by Ileana Balcu | Jul 3, 2012
By Michael L. Millenson The empowered patient, skeptical of professional authority, is not a new phenomenon: he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning book, The Radicalism of the American...
by e-Patient Dave | Jun 14, 2012
Yesterday, in an email to our Society’s membership, Regina Holliday announced an amazing event that will happen as summer ends. It arose out of an episode with the “Partnership For Patients” program, whose title many of us felt revealed a...
by e-Patient Dave | May 28, 2012
Quick update before I go out and play: SPM member @AfternoonNapper just notified me that two more of us, Katherine Kelly Leon and Sharonne Hayes MD, are also on NPR today! Patients Find Each Other Online To Jump-Start Medical Research I awoke this holiday morning to a...
by e-Patient Dave | May 24, 2012
From SPM member Keith Boone, author of the e-Patient Rap, whose first verse I did in my TEDx Maastricht talk: My daughter did something interesting a couple of weeks ago when we went to her pediatrician’s office. We asked for her records, and she told the clerk...
by e-Patient Dave | May 20, 2012
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...
by e-Patient Dave | May 19, 2012
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo’s desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he...
by e-Patient Dave | Apr 25, 2012
I participated today in a webinar  hosted by eHI. My slides arrived (ahem) too late to be broadcast, so I posted them online, with comments, on my site. In case you don’t click through to the whole thing, here’s a quick excerpt: Long ago in another career...
by Kathleen O'Malley | Apr 24, 2012
For those who didn’t make it to TEDMED 2012, here’s a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED’s acceptance of “The Role of the...
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