by e-Patient Dave | Apr 13, 2012
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, “We must vote.” You did. We’re in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and...
by Dan Hoch | Apr 5, 2012
In a recent commentary on the American Public Media program Marketplace Money, Francis Frei discussed the failure of self check-out at supermarkets. Her insightful commentary is clearly based on both personal experience as well as her professional knowledge of...
by John M. Grohol, Psy.D. | Mar 17, 2012
I’m a little confused… I’m not sure where the U.S. Constitution guaranteed the government’s right to interfere with the doctor/patient relationship. Nowhere in this historic document could I find anything about the government’s right to...
by e-Patient Dave | Mar 16, 2012
Beyond question, the “gimme my damn data” rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his...
by e-Patient Dave | Mar 16, 2012
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient’s...
by Susannah Fox | Mar 9, 2012
Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users...
by Sarah Greene | Jan 31, 2012
NOTE: We’re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she’s continued her work at the leading edge of thought about medical knowledge. Sarah is ahead of most of...
by Kathleen O'Malley | Dec 12, 2011
There’s no stopping an idea whose time has come. SPM member Nancy Finn (@NFinn8421), in the process of her own odyssey as a health care thinker, had an epiphany that strongly echoes the principles of the growing P4 Medicine movement (“predictive,...
by e-Patient Dave | Nov 25, 2011
Wow. Todd Park, Chief Technical Officer at HHS, ought to be jumping out of his skin with joy at this one. This time, House, M.D. fans, it was lupus. The article “Evidence-Based Medicine in the EMR Era” published in the Nov. 10 issue of the New England Journal of...
by e-Patient Dave | Nov 10, 2011
To read this post in English, click here. Hacía tiempo que teníamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la...
by e-Patient Dave | Nov 10, 2011
It’s been a long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish,...
by Kathleen O'Malley | Nov 9, 2011
Guest blogger Nancy Finn reports on the popularity of health apps. She is the author of e-Patients Live Longer. The Pew Internet & American Life Project conducted a national telephone survey of 2,277 adults in May 2011 and found that 83% own some kind of cell...
by David Harlow | Sep 30, 2011
On September 14, HHS released for comment draft lab results regulations that will, if finalized, effectively bathe the Achilles’ heel of health data in the River Styx of ¡data liberación! Lab results will be made available to patients, just like all other...
by Susannah Fox | Sep 23, 2011
I was honored to give the closing keynote at the Medicine 2.0’11 Congress at Stanford. In preparation for it, I gathered all of the Pew Internet Project’s recent research on social networks, smartphones, and health communications. Then I added stories from...
by Kathleen O'Malley | Sep 2, 2011
Nancy Finn submitted this guest post about the challenges facing doctors and patients who want to have clinical conversations online. The quest for the right communication formula and balance that will satisfy doctors and e-patients who want to experience continuous...
by e-Patient Dave | Aug 17, 2011
I’m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It’s like we’ve been ships in the night – not crossing...
by Susannah Fox | Aug 1, 2011
Update: My notes are now online: Mind the Gap: Peer-to-peer HealthCare. The newest material is in the section entitled, “Getting Past the Early-Adopter Stage” — roadblocks, opportunities, and beacons for change (patient leaders, clinician leaders,...
by John M. Grohol, Psy.D. | Jul 24, 2011
I’m all for citizen journalism, and can even stand the content mills like LiveStrong, who have pimped out their name and brand in order to make a quick buck. But I draw the line with bad reporting and worse, biased representation of the data to prove a point....
by Susannah Fox | Jul 15, 2011
Sachin Jain and John Rother’s JAMA commentary, “Are Patients Knights, Knaves, or Pawns?” is an article that begs to be shared. The first time I read it I had to stand up, I was so excited — how can I design a survey to capture these...
by Susannah Fox | Jul 11, 2011
I am as interested in the negative effects of technology as I am in the positive, so I recently dove into a book by Seth Mnookin: The Panic Virus: A True Story of Medicine, Science, and Fear, which focuses on vaccines. His summary of the Information Age challenge...
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