by Susannah Fox | Jul 6, 2011
Here’s how tech guru Tim O’Reilly describes his work: So often, signs of the future are all around us, but it isn’t until much later that most of the world realizes their significance. Meanwhile, the innovators who are busy inventing that future live...
by e-Patient Dave | Jun 24, 2011
On this blog we try to understand and explain how the world has changed and is changing, with the goal of helping everyone – policy people, patients, clinicians, administrators, businesses – optimize for the world as it changes. Nowhere is that more...
by Susannah Fox | May 25, 2011
Here’s my simple definition of peer-to-peer healthcare: Patients and caregivers know things — about themselves, about each other, about treatments — and they want to share what they know to help other people. Technology helps to surface and organize...
by e-Patient Dave | May 22, 2011
The Society for Participatory Medicine was well represented last week at the 14th  ICSI/IHI Colloquium. (ICSI is the Institute for Clinical Systems Improvement, a small midwestern think tank that’s way too poorly known.) SPM members who presented: Jane...
by Susannah Fox | May 12, 2011
Here it is: my 2010-11 yearbook! Will you sign it? That’s how I feel about this latest report from the Pew Internet Project and the California HealthCare Foundation: “The Social Life of Health Information, 2011.” It contains all the insights...
by Susannah Fox | May 11, 2011
The Pew Internet Project and California HealthCare Foundation will released our latest report on the internet’s impact on health and health care tonight at midnight (Eastern U.S. time). It is titled, “The Social Life of Health Information, 2011” (and...
by e-Patient Dave | Apr 27, 2011
My friend Dorron Levy, who lives near Tel Aviv, alerted me to this blog post in Hebrew; Google’s English translation here. It starts with CNN’s Empowered Patient reporter Elizabeth Cohen, and moves on to discuss a recent conference organized by the...
by John M. Grohol, Psy.D. | Apr 12, 2011
While doing some research the other day on personal health records (PHRs), I came across this article, describing Revolution Health’s announcement — without much media attention — about dropping its PHR at the beginning of 2010. (Disclosure: I worked...
by e-Patient Dave | Mar 22, 2011
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared...
by e-Patient Dave | Mar 21, 2011
Readers interested in health IT issues will want to know about today’s webcast at 1:00 ET, and the policy issue described here by SPM’s policy chair David Harlow (Twitter @HealthBlawg), from the SPM members listserv: There’s a significant announcement out...
by Dan Hoch | Mar 7, 2011
I don’t hide the fact that I am a dyed in the wool liberal. I read, and agree with, pretty much everything Paul Krugman writes. But, it’s rare for me to discover the kind of synergy between my Krugman-inspired ire over economic policy and politics generally and the...
by John M. Grohol, Psy.D. | Mar 5, 2011
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog,...
by e-Patient Dave | Mar 4, 2011
Yesterday (March 3), NPR’s popular program “Talk of the Nation” covered something we discuss often: how e-patients find information and find each other, online. Featured guests were Pat Furlong, mother of two boys with a rare disease, who started an...
by David Harlow | Feb 23, 2011
The Health Research Institute at PricewaterhouseCoopers released a report today entitled Putting patients into “meaningful use.” It begins with the anecdote I’ve blogged about previously regarding a diagnosis by Facebook in lieu of a PHR, which some...
by David Harlow | Feb 16, 2011
There is a growing recognition within the medical-industrial complex that the patient is a key element of the enterprise, and that patient satisfaction, patient experience, patient engagement, patient activation, patient-centeredness are very important. Some research...
by e-Patient Dave | Jan 20, 2011
Thanks to friends Kavita Patel and Brian Ahier for pointing out this sign of shifting winds, in yesterday’s Time online:Â Googling Symptoms Helps Patients and Doctors. It’s a watershed moment, because the last physician column I saw on this was the...
by Jon Lebkowsky | Jan 9, 2011
From the editors of our society’s journal, the Journal of Participatory Medicine: As we close out Volume 2 of JoPM, we’re pleased to look back at how the journal has grown. We published a total of 23 articles in 2010. We published our first two podcasts....
by e-Patient Dave | Dec 22, 2010
What do we (patients) call ourselves? This is a deep subject that’s been debated a lot. (If I were Susannah Fox I’d toss in a dozen worthy links here:), but I’m short on time. Please add some in comments.) There is indeed power in the words we use,...
by Susannah Fox | Dec 13, 2010
Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world) does not miss this latest opportunity for education and discovery? The...
by e-Patient Dave | Dec 12, 2010
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
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