by e-Patient Dave | Mar 4, 2010
Empowered patients know they’re responsible for their choice of care providers. We usually follow our clinicians’ advice, but we take responsibility for it. That’s hard when a quality agency obscures its findings. So I object to a reality reported...
by e-Patient Dave | Feb 26, 2010
We (the people on our banner graphic) are at the annual e-patients.net retreat – which, this year, is the board meeting of the Society for Participatory Medicine. Whether or not you’re a member yet (join here), we want to know: what do YOU want the...
by e-Patient Dave | Feb 24, 2010
As I’ve noted recently, this Thursday I’m on a stakeholder panel at a meeting of the Adoption/Certification Workgroup, which is part of the Federal Health IT Policy Committee. As noted in my previous post, this is a busy day, and each of us gets only 5-7...
by e-Patient Dave | Feb 21, 2010
One profound shift in healthcare enabled by the internet is the Web’s ability to be a common platform for huge numbers of low-volume diseases. This is the “long tail” effect that makes Amazon and eBay a success, selling vast numbers of items you...
by e-Patient Dave | Jan 20, 2010
This is a guest post from Christine Kraft, Twitter friend @ChristineKraft. She’s a pensive, musey blogger at CocoVillage, and “wicked smaht,” as we say in Boston. She’s also the one who introduced us to Regina Holliday last year. She recognizes...
by e-Patient Dave | Jan 16, 2010
This is a guest post by Lucien Engelen (Dutch Twitter friend @Zorg20), who was featured in October’s The internet is changing healthcare – video from Reshape09. Here, he takes it to the next step, moving from health 2.0 to “health 2.010”. I love it!...
by e-Patient Dave | Jan 6, 2010
The following is the proposal I submitted Tuesday, to speak at O’Reilly / TechWeb’s Government 2.0 Expo, May 25–27 in Washington. ______________________________ The Invisible Stakeholder: Why America Needs a Patient-in-Chief “These are exciting and...
by e-Patient Dave | Jan 2, 2010
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
by e-Patient Dave | Dec 27, 2009
The Quantified Self (aka “QS”) is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional “Show&Tell” meet-ups, with elbow-rubbing and a...
by e-Patient Dave | Dec 20, 2009
We’re thrilled to see our Joe and Terry Graedon, of PeoplesPharmacy.com, in the New York Times (“Not All Drugs Are the Same After All”) telling a truth that the FDA hasn’t figured out: generics don’t always work the same as the brand name...
by e-Patient Dave | Dec 10, 2009
There’s new validation that participatory medicine is an idea whose time has come: the co-chairs of the Society for Participatory Medicine (my primary physician Dr. Danny Sands and I) are on this year’s list of 20 People Who Make Healthcare Better, an...
by e-Patient Dave | Dec 5, 2009
Some people think e-patient ideas are new. They’re not. I’d like to give credit to a noble antecedent, and ask for your support. Shortly after I discovered this blog (February ’08) I recognized two strong precedents from earlier in my life:...
by e-Patient Dave | Nov 16, 2009
In last weekend’s post about “patients want all their data” I said I wished I’d known about the article (published mid-May) during last summer’s health data debates in Washington. Incredible Dutch e-patient Lodewijk Bos tweaked me, saying...
by e-Patient Dave | Nov 15, 2009
Ten years ago this week, 11/18/99, Linda Kenney was scheduled for ankle replacement surgery. She woke up three days later in the ICU. Her chest had been cut open. She was in the hospital ten days. And nobody talked about what had happened. What had happened is that...
by e-Patient Dave | Nov 11, 2009
Here’s another true e-patient story from one of our team. Cheryl Greene is third from the left in the banner at top of this blog. She’s a long-time friend of our founder “Doc Tom” Ferguson, a board member of the Society for Participatory...
by Danny Sands, MD | Nov 9, 2009
For most people, their impetus to be actively engaged in healthcare comes from an experience with serious illness—either their own or a loved one’s. My journey into participatory medicine began during my internal medicine residency at Boston City Hospital, a public...
by Jon Lebkowsky | Oct 21, 2009
Press release for the October 22nd launch of the Journal of Participatory Medicine: Improving health care: Journal of Participatory Medicine will document methods that work for patient/provider collaboration Launch at Connected Health Symposium features essays by...
by e-Patient Dave | Oct 15, 2009
Marcia Angell MD is a well-known, respected physician, long-time editor of NEJM. So it was a bit of a shock today when Amy Romano, blogger for Lamaze International, sent me this quote: It is simply no longer possible to believe much of the clinical research that is...
by Susannah Fox | Oct 14, 2009
Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was...
by Gilles Frydman | Oct 13, 2009
Note: if you do not use Twitter an explanation of this post’s title may be in order. #WhyPM is the Twitter hashtag we have been using collectively to announce the launch of the Journal of Participatory Medicine and to mention topics of interest from the Journal and...
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