by Ileana Balcu | Jul 16, 2014
This blog welcomes guest posts from SPM members on relevant topics. Zack Berger of Johns Hopkins (@ZackBergerMDPhD) is highly committed to participatory medicine, and as this post shows, his book Talking To Your Doctor gets right down into the how-to’s. (More on...
by Ileana Balcu | May 6, 2014
Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient’s hospital stay – really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress...
by Ileana Balcu | Jan 14, 2014
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused...
by Susan Woods | Nov 12, 2013
Any of us would probably have paid to be at the gathering of over 1000 medical school deans, faculty and residents at last week’s American Association of Medical College’s (AAMC) meeting to hear Anna Quindlen deliver her speech, Healthcare in an Age of...
by Susannah Fox | Jul 19, 2013
Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...
by e-Patient Dave | Feb 24, 2013
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine,...
by e-Patient Dave | Dec 24, 2012
In the Society for Participatory Medicine we talk about professionals and patients being full partners in care. And sometimes, as in any partnership, the two part. Have you ever “fired” anyone? Before it got to that point, did you express your concern...
by Susannah Fox | Sep 7, 2012
I witnessed an intriguing Twitter conversation between Christy Collins and Greg Biggers about disease names, so I asked Christy to write up her thoughts. It is an honor to host this guest post: By Christy Collins When I started an advocacy and research organization...
by Kathleen O'Malley | Jan 9, 2012
In the latest post in our Why I Joined SPM series, guest blogger Ileana Balcu shares her story of pain, searching, and finally healing, once she discovered the e-patient community. Follow her on Twitter at @yogileana. It was 2002 and I was happily pregnant. I thought...
by Kathleen O'Malley | Oct 28, 2011
This guest post by Lisa Gualtieri originally appeared in the author’s health blog. “By the time you see the doctor, you’re either dead or you’re better,” my mother-in-law told me. She had to have multiple tests, all with long waits to get the appointments and...
by e-Patient Dave | Oct 5, 2011
We’ve often said here that when an e-patient wants to be responsible for treatment decisions, it’s essential to know how to evaluate the research about each option. A common mistake is to trust, blindly, news reports about a treatment, or even to trust,...
by e-Patient Dave | Aug 23, 2011
Stop what you’re doing, as soon as possible, and spend 20 minutes watching this. It’s the most powerful short talk I’ve ever seen about health care. Our e-patient white paper is titled “e-Patients: How they can help heal healthcare.” In...
by e-Patient Dave | Jan 13, 2011
A recurring theme on this blog is the need for empowered, engaged patients to understand what they read about science. It’s true when researching treatments for one’s condition, it’s true when considering government policy proposals, it’s true...
by e-Patient Dave | Dec 29, 2010
Kent Bottles MD is one of the best healthcare thinkers I’ve met. Yesterday he completed a two-part tour de force on The Health Care blog titled “The Difficult Science.” Here are part 1 and part 2. This is about “how do we know what we think we...
by Susannah Fox | Dec 28, 2010
Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D., last September: As you listen to Dr. Coombs’s chilling story about...
by e-Patient Dave | Sep 27, 2010
Jessie Gruman, PhD, Co-Editor-in-Chief of our Journal of Participatory Medicine, underwent surgery today in New York to address the fourth cancer-related diagnosis of her life. Today she released a blog post about it. Jessie has been a natural choice to co-lead our...
by e-Patient Dave | Aug 3, 2010
Next in our “Why I Joined” series is Victor Montori, MD of the Mayo Clinic. My wife and I met him in May; he’s high energy, with boundless optimism. And as you’ll see, he feels very strongly about patients being at the center of healthcare. The...
by e-Patient Dave | May 18, 2010
Through the magic of Google Alerts, Diane Engelman recently learned of this blog. She’s one heck of an e-patient, though until now she’d never heard the word. That proves patient empowerment is a real trend, driven by a powerful force: the desire to help...
by Susannah Fox | Oct 14, 2009
Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was...
by Dan Hoch | Feb 26, 2009
Tonight in Boston a series of speakers are presenting views on the coming transformation of healthcare. (See the web at http://hilforum.com/transforminghealthcare/) Here’s the speaker list— Opening remarks – Steven Wardell, President, H.I.L. Forum and Summit...
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