e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Wall Street Journal article on getting patients involved in their healthcare
An article published yesterday in Wall Street Journal The Health-Care Industry Is Pushing Patients to Help Themselves - Providers are Using Tech Tools and Personalized Approaches to Get Patients More Engaged...
Getting your health data: BlueButton/ShareCare tweetchat Thursday
A press release published Tuesday begins: Sharecare and Blue Button Host Twitter Chat to Help Consumers Take Control of Their Personal Health Information Gaining control of your health and your personal health information is more than just a convenience – it’s your...
SF Bay Area chapter of SPM starting. Join!
SPM member Richard Anderson @RiAnder has a lot of experience helping to found and develop another organization's local chapters around the world. Because of a nightmare experience with the U.S. healthcare system, he has decided to work to change that system, and as...
Patients Invited! Health Informatics Conference seeks Patient Participation
An international conference addressing information technology and communication in health (ITCH) will be held February 26 – March 1, 2015 in Victoria, British Columbia, Canada. Professor Stephen Hawking’s statement, “we learned to talk, we learned to listen, we...
New in JoPM: “I No Longer Have to Go to See the Doctor:” How the Patient Portal is Changing Medical Practice
SPM co-founder Charlie Smith (Charles W. Smith, MD) was "Doc Tom" Ferguson's own physician, and currently serves as co-Editor-in-Chief of our Journal of Participatory Medicine. He's just published a brief but important editorial in the journal. It begins (emphasis...
Uri Goren TedxHIT video: Patients are Not Empty Carriages
Uri Goren is the General Manager of e-Pochonderiac a blog about healthcare and digital technology and also a digital health consultancy and agency working in Israel to support digital health in the local health and pharmaceutical industry and to promote the roll of...
Via @Cancer101: 10 things every patient needs to know
A handy one page chart from our Past President Sarah Krug through Cancer101 summarizes the best way to become an e-patient: http://cancer101.org/wp-content/uploads/2012/06/top-10.pdf Here are a few points: You have a story to tell. Don't be afraid to tell it. Make...
JAMA: Reducing the Trauma of Hospitalization
Thanks to member Marilyn Mann for sharing this free article in JAMA with a suggestion on how to better personalize the patient's hospital stay - really sensible suggestions. One reads them and wonders why they are not in place already. An excerpt: Stress is also toxic...
Times science reporter asks: “Ever hit a paywall?”
Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer "yes" and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from non-scientists....
Aging & e-Patients: Challenges and Opportunities in Geriatrics
Guest post by SPM member Leslie Kernisan, whose words first appeared here in a September interview at Medicine X: "Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who’s deeply interested in and committed to enabling elders and caregivers through patient and...
OpenNotes & Transparency: Ongoing conversation
OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...
The Iceberg Waiting for Your Health Care Data
The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...