e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Guest post by Zack Berger, MD, PhD: The pledge of the patient-centered physician
This blog welcomes guest posts from SPM members on relevant topics. Zack Berger of Johns Hopkins (@ZackBergerMDPhD) is highly committed to participatory medicine, and as this post shows, his book Talking To Your Doctor gets right down into the how-to's. (More on this...
Jessie Christine Gruman, 1953-2014
I'm saddened (really saddened, as I write this) to report that one of the titans of our movement, Jessie Gruman, died unexpectedly yesterday at home in New York. She had long been sick, but the demise was sudden. In addition to the mountain of work she produced as...
Keeping Patients in the Dark: SIIPC14
Several SPM members were in attendance at the recent SIIPC14 conference at Dartmouth, where the ongoing work on healthcare system transformation  has been the source of much great content on e-patients.net over the years. Casey Quinlan - yes, yours truly - has...
The Doctor as Patient
Charlotte Yeh is the Chief Medical Officer of AARP Services, and has had a long career in government and as a practicing emergency physician. (Our paths first crossed years ago when we were both working on pre-hospital care reform in Massachusetts.) She wrote a piece...
Of half gods and mortals: Aesculapian authority
Written in collaboration with Linda Trietler, MSN, RN - PhD student. Review of Kalisch, B. J. (1975). Of half-gods and mortals: Aesculapian authority. Nursing Outlook, 23(1), 22-28. As we work to develop a collaborative and patient centered health care system we must...
A Farewell to Richard Rockefeller, e-Health Visionary
The founders of SPM were saddened this weekend to learn of the death, in a private plane crash, of Richard Rockefeller, longtime friend of "Doc Tom" Ferguson. Rockefeller was credited in Ferguson's white paper as "a White Paper Advisor." - e-Patient Dave ________ When...
From BMJ: The BMJ’s own patient journey – Seeks to promote patient partnership by walking the talk
An interesting editorial in the BMJ (British Medical Journal) describes BMJ's path to including patients in reviewing the articles and research published in the Journal. I hope this initiative will be successful and copied by the healthcare world....
Wall Street Journal on patient access: “Health-Care Providers Want Patients to Read Medical Records, Spot Errors”
Regular readers know that this blog has long advocated for patient access to, and engagement with, the medical record. In the past 2-3 years we've especially advocated for OpenNotes, in which patients can see their primary's actual visit notes.  At my hospital, Beth...
HIMSS blog: Thought Leadership – The Patient Perspective
Interesting blog at HIMSS by Pete Rivera: use the patient to redesign the workflow: Thought Leadership - the Patient Perspective For years, I advocated that health IT does not drive business. I still do. Rethinking your processes to leverage technology is just smart...
Wall Street Journal article on getting patients involved in their healthcare
An article published yesterday in Wall Street Journal The Health-Care Industry Is Pushing Patients to Help Themselves -Â Providers are Using Tech Tools and Personalized Approaches to Get Patients More Engaged...
Getting your health data: BlueButton/ShareCare tweetchat Thursday
A press release published Tuesday begins: Sharecare and Blue Button Host Twitter Chat to Help Consumers Take Control of Their Personal Health Information Gaining control of your health and your personal health information is more than just a convenience – it’s your...
SF Bay Area chapter of SPM starting. Join!
SPM member Richard Anderson @RiAnder has a lot of experience helping to found and develop another organization's local chapters around the world. Because of a nightmare experience with the U.S. healthcare system, he has decided to work to change that system, and as...
