by John M. Grohol, Psy.D. | Apr 3, 2008
Shannon Brownlee had a great piece in the Washington Post the other day about how, as we live older, and hopefully more healthy lives, we’re being reminded more and more often of all the things that are wrong with us. Out of breath? Maybe you have...
by Michael Millenson | Jun 16, 2014
The founders of SPM were saddened this weekend to learn of the death, in a private plane crash, of Richard Rockefeller, longtime friend of “Doc Tom” Ferguson. Rockefeller was credited in Ferguson’s white paper as “a White Paper Advisor.”...
by John M. Grohol, Psy.D. | Jan 15, 2025
For decades, policymakers, CEOs, politicians, doctors, nurses, healthcare workers, caregivers, and anyone who’s been a patient inside or outside a hospital has known one simple fact — the US healthcare system is broken. Every other first world country has...
by Danny Sands, MD | May 6, 2024
I care for a diverse population of individuals in my primary care practice. It’s hard enough to motivate behavior change in people who have little motivation, but it’s even more challenging when it’s hard to connect with them because of cultural disparities....
by Eric Bersh | Jul 12, 2023
Editor’s note: Ibrahim Rashid contracted Long COVID more than two years ago. The experience is propelling his patient advocacy and entrepreneurship, as co-founder of the digital health company Strong Haulers. In this excerpt from his new book, Strong Hauler: Learning...
by Eric Bersh | Jan 11, 2023
I recently saw The Color of Care, a documentary highlighting the disparate and inequitable care received by Black and Brown individuals during the COVID-19 pandemic. During the movie, Executive Producer Oprah Winfrey opined that one of the primary issues with...
by e-Patient Dave | Nov 30, 2022
This post is about a paper I co-authored in JMIR in August with Bertalan Meskó MD PhD, Patient Design: The Importance of Including Patients in Designing Health Care. It’s challenging and perhaps a bit confrontational to conventional healthcare, because it...
by Danny van Leeuwen | Apr 18, 2022
Engaging patients differs depending on the role. Those on national Boards lead, strategize, advocate, communicate. Adam Thompson is on the Board of NQF. Listen in. Proem As a nurse, I studied individual health. Then I became a student of organizational health. That...
by Danny van Leeuwen | Oct 18, 2021
What does healthcare cost mean? I can’t explain it. Listen to Matt Pickering from Nat Quality Forum help us out. Consider serving as a patient rep with NQF. Listen to full 41 min episode here https://health-hats.com/pod145/ YouTube Episode Trailer Proem If a grocery...
by Carlos Briceño | Jul 20, 2021
I don’t like having something wrong with my body. I don’t like feeling achy. I can’t stand fevers. I don’t like being sick. When I do get ill, I want whatever healthcare team I deal with to be full of empathy and quick to figure out what ails me. If that sounds a bit...
by Mohammed Mallouh | Jul 14, 2021
In 2013 the Institute of Medicine published a landmark 436 page consensus report, Best Care at Lower Cost: The Path to Continuously Learning Health Care in America. Its summary contains the characteristics of a continuously learning system:Â Note that the second...
by Danny van Leeuwen | Jan 12, 2021
Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Proem You know the old story of the researcher looking for their lost keys under the streetlight when they lost them...
by Danny van Leeuwen | Dec 21, 2020
How do regular people find evidence-informed guidance to help make decisions about safe living in a pandemic? Questions answered when needed in a useful manner? Part 2 in this Person-First approach. Join our journey. Proem A few weeks ago, on this podcast, I...
by Danny van Leeuwen | Nov 30, 2020
Healthcare activists need communities to affect change. Considering public-private partnership with NCQA’s Digital Measurement Community with Ben Hamlin. Proem Activists seek to inform and nudge change for the better – political, social, cultural, healthcare,...
by Danny van Leeuwen | Nov 9, 2020
Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...
by e-Patient Dave | May 12, 2020
This morning the New England Journal of Medicine released the latest publication about OpenNotes. The news: an innovative pre-visit form created for the “OurNotes” study has been released before the study is completed, for other providers to use to improve...
by John M. Grohol, Psy.D. | Jan 28, 2020
Epic is a widely used Electronic Health Record (EHR) system by thousands of hospitals across the United States. There’s a very good chance that your physician uses Epic software in their everyday practice. Among many other tasks, Epic’s software helps...
by e-Patient Dave | Oct 14, 2019
Hello, SPM members! – And honored guests, perhaps soon to be members. Join here. :-) Over the past few weeks, I have received quite a few inquiries about livestreaming opportunities for our conference in Boston, Tuesday, October 15. If you can’t attend...
by e-Patient Dave | Mar 27, 2019
This is a guest post by SPM member, heart patient and author Elizabeth Rankin, BScN. Some background: one of the most-discussed topics on our blog is shared decision-making (SDM), with pages and pages of posts (75 in the category), dating back to 2010’s Salzburg...
by e-Patient Dave | Jul 15, 2018
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to...
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
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