by Brenda Merriweather | Apr 26, 2024
During my doctoral study in nursing practice a couple of years ago, I learned about a champion of nursing informatics, Dr. Nancy Staggers. Dr. Staggers assisted in developing the American Nursing Association’s Scopes and Standards of Practice. She also contributed to...
by Eric Bersh | Apr 6, 2024
To implement successful change you must, unequivocally, understand the culture of the environment you are looking to change. Culture and change management are inextricably connected. Culture is a made up of a series of repeated, engrained, and expected behaviors and,...
by e-Patient Dave | Nov 20, 2023
I’m working on lots of things about generative AI in healthcare, because among other things, “GenAI” is incredibly empowering and liberating for e-patients. For kicks I decided to ask GPT-4 what it thinks participatory medicine is. Here’s its...
by Eric Bersh | May 2, 2023
Twenty-five years ago, I learned I had a large liposarcoma in my left quadricep. I have written elsewhere about my surprise when my surgeon informed me that he and the team had changed the treatment plan. What team? Who are these people? Why wasn’t I at the team...
by Eric Bersh | Apr 20, 2023
When I describe the concept of participatory medicine, people who work in the healthcare industry often confuse it with other change initiatives, like social determinants of health or better access to care. It’s a different story when I describe participatory...
by John Novack | Sep 12, 2022
Embracing shared decision making in medicine will improve patient outcomes, reduce costs, increase health equity, and even help alleviate clinician burnout, Danny Sands, MD, co-founder of the Society for Participatory Medicine, said in a recent podcast interview. Erin...
by Eric Bersh | Aug 17, 2022
Collaborations across healthcare can save lives – especially when working with patient advocates. For a person like me, who is impacted by a rare, neurological, and incurable disease, it’s my mission to ensure that patients’ perspectives are represented early...
by Geri Lynn Baumblatt | Feb 23, 2022
Informal, unpaid family caregivers and care partners are increasingly the backbone of participatory medicine. My father was a physician, but when he was seriously ill, it was really on my mom and me to advocate for him, understand the constellation of conditions,...
by Jay Spitulnik | Sep 7, 2021
Throughout the history of the Society for Participatory Medicine (SPM), the discussions have focused on two groups of participants. The first is the patient and caregivers. SPM’s work, as illustrated in the Manifesto, has been dedicated to ensuring that members of...
by Eric Bersh | Aug 2, 2021
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of Health Story Collaborative. Here they discuss the meaning and intent of Participatory Medicine. Did you enjoy this video? Sign the Manifesto and learn...
by e-Patient Dave | Mar 8, 2021
Time for change! The theme of our 2019 conference was #Time4Change. This post kicks off a major 2021 campaign for our Society: the Participatory Medicine Manifesto. At that event we took action: in a design-thinking exercise, attendees crowdsourced the ideas that have...
by Brian Mack | Jul 10, 2020
To paraphrase Abraham Lincoln, “AÂ compass will point you to true north, but it doesn’t show you the swamps. If you get bogged down, what’s the use of knowing the direction?” When on a journey, it’s a good policy to periodically take...
by e-Patient Dave | Dec 26, 2018
Editor’s note: this guest post by SPM member Gail Phillips shares the odyssey that led her through numerous related disciplines, eventually discovering our society and our conference last October. Members can submit guest posts to our blog (guidelines). Join SPM...
by Peter Elias | Sep 27, 2018
A recent medical society article demonstrates that participatory medicine advocates have made progress. The central point of the article is that the current approach to metrics distracts from the need to focus on the patient. As the authors phrase it: “There are...
by John Novack | Sep 10, 2018
First in a series of interviews with outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston. Register here. Doug Lindsay calls himself as Transformational Thought Leader, an apt...
by John Novack | Sep 7, 2018
The Society for Participatory Medicine advocates for transforming the culture of care, so we watch for signs that the culture is changing. A newly released peer-reviewed article hints at progress: formally introducing patient perspectives into not just the practice of...
by Sue Woods | Dec 6, 2017
The following is a shared Press Release from the Society of Participatory Medicine and the Journal of Medical Internet Research: JMIR Publications is the new publisher of the Journal of Participatory Medicine (JoPM) (Toronto/Boston, Dec 6th, 2017) Â The Society for...
by Michael Millenson | Nov 15, 2017
Baseball, like medicine, is deeply imbued with a sense of tradition, and no team more so than the New York Yankees, disdainful of innovations like placing players’ names on the backs of their jerseys and resistant to eroding strict standards related to haircuts and...
by e-Patient Dave | Apr 24, 2017
SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal’s site. Our Journal, begun as a grass roots initiative at the Society’s formation, is a crown...
by e-Patient Dave | Nov 21, 2016
As kindlers and promoters of a social movement, our Society for Participatory Medicine keeps a keen eye out for signs of traction in credible places for what we’ve been advocating since 2009: Participatory Medicine is a model of cooperative health care that...
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