by David Harlow | May 1, 2014
The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...
by David Harlow | Mar 27, 2014
A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient...
by e-Patient Dave | Mar 27, 2014
The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don’t you love the logo? Turning the clinic on its ear?) It’s utterly engaging and empowering...
by e-Patient Dave | Mar 21, 2014
This isn’t directly related to participatory medicine per se, but for students of the social web and “health is social” factors, this will be fascinating and important. (In my speaking work, it’s always useful to cite new research that sheds...
by e-Patient Dave | Mar 13, 2014
This is a real treat – a guest post by SPM member and participatory pioneer Kate Lorig. Kate was a friend of our founder “Doc Tom” Ferguson, is cited twice in his e-patient white paper (see right sidebar), was the author of an important essay What...
by e-Patient Dave | Mar 5, 2014
Care designers and fans of patient-centered care, listen up: a hat tip to Danish friend Malene Louise Djurhuus Laubinger for this, from The Guardian: How collaborating with patients improves hospital care. We’ve often said on this blog that participatory...
by Susan Woods | Feb 23, 2014
What do you think should be included in a course in Consumer Health Informatics (CHI) in a graduate medical informatics program? I know a graduate curriculum begging for input from the most engaged and empowered consumers, patient advocates, and technology and health...
by Nancy Finn | Feb 13, 2014
The ability to write something meaningful in140 characters, including a shortened URL, is the basis of Twitter. Over 500 million tweets go out every day to individuals who enjoy the simplicity, functional design, and speed of delivery that twitter offers, along with...
by David Harlow | Feb 4, 2014
The lab test result data access rule is finally final. See the HHS press release and the final rule, which is scheduled to be published on Thursday. What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of...
by e-Patient Dave | Feb 1, 2014
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This...
by Nancy Finn | Jan 3, 2014
In 2014, the baby boomers (individuals born between 1946 and 1964) will turn 65 at a rate of nearly 10,000, individuals a day. Over the next five years 17 million baby boomers turn 65. That’s a lot of people retiring, joining the Medicare system developing chronic...
by e-Patient Dave | Jan 1, 2014
The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog. In our Society for Participatory Medicine, part of our work is to...
by e-Patient Dave | Dec 19, 2013
As we’ve said endlessly here (and in Washington), one of the key enablers of better healthcare is access to information. For that subject there’s no more important job in the world than America’s National Coordinator for Health IT, who runs ONC...
by Danny Sands, MD | Nov 27, 2013
As we know participatory medicine is based upon mutual respect: the clinician respecting the self-knowledge, experience, and wisdom that the patient brings to the collaboration and the patient respecting the knowledge, clinical experience, wisdom, and technical skills...
by Ileana Balcu | Nov 27, 2013
In this guest blog post, member Beatrice Tiangco describes some of the pain and suffering in the Philippines after the typhoon and expresses her gratitude for the SPM, local community and overall support. Beatrice Tiangco is a practicing Medical Oncologist from the...
by e-Patient Dave | Nov 24, 2013
Update Nov. 26: great news! In today’s NY Times is Gynecologists May Treat Men, Board Says in Switch! Their reason for the change is still totally doctor-centric – even the mention of patients is about “the doctor-patient relationship,” not...
by Casey Quinlan | Nov 18, 2013
In 1517, Martin Luther nailed his “Ninety-Five Theses” to the wooden doors of Wittenberg Cathedral, sparking a global reformation of the Christian faith that’s still going on today. In the 1950s and 1960s Dr. Martin Luther King Jr. worked to drive inclusion for all in...
by Susannah Fox | Nov 15, 2013
A clinical trial in Kenya confirmed that human kindness is the secret ingredient to health and mobile phones are an ideal delivery system. Well, that’s my interpretation. Here’s the gist: Taking your meds is essential to maintaining your health when you...
by Susan Woods | Nov 12, 2013
Any of us would probably have paid to be at the gathering of over 1000 medical school deans, faculty and residents at last week’s American Association of Medical College’s (AAMC) meeting to hear Anna Quindlen deliver her speech, Healthcare in an Age of...
by e-Patient Dave | Nov 3, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This...
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