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Jessie Gruman: Poetry in Motion

This essay was written by Sarah Greene, co-founder of the Journal of Participatory Medicine and currently Founder/CEO of RapidScience.org.  “That the powerful play goes on, and you may contribute a verse.” – Walt Whitman, ‘O Me, O Life’ We New Yorkers have been...
To Be, or Not to Be, a B Corp

To Be, or Not to Be, a B Corp

Preface (later) by e-Patient Dave – Casey and I were discussing that one of the obstacles impeding changing in medicine is that by law, corporate officers have to serve their shareholders first, i.e. make money before they get into any do-gooder stuff. The...

Jessie Gruman remembrances set for NY, DC

We reported five weeks ago about the passing of Jessie Gruman, one of the greatest figures in our movement, founder of the Center for Advancing Health (CFAH), founding co-editor-in-chief of our Journal of Participatory Medicine, and much more. CFAH has since expanded...

Jessie Christine Gruman, 1953-2014

I’m saddened (really saddened, as I write this) to report that one of the titans of our movement, Jessie Gruman, died unexpectedly yesterday at home in New York. She had long been sick, but the demise was sudden. In addition to the mountain of work she produced...

SF Bay Area chapter of SPM starting. Join!

SPM member Richard Anderson @RiAnder has a lot of experience helping to found and develop another organization’s local chapters around the world. Because of a nightmare experience with the U.S. healthcare system, he has decided to work to change that system, and...

Uri Goren TedxHIT video: Patients are Not Empty Carriages

Uri Goren is the General Manager of e-Pochonderiac a blog about healthcare and digital technology and also a digital health consultancy and agency working in Israel to support digital health in the local health and pharmaceutical industry and to promote the roll of...

OpenNotes & Transparency: Ongoing conversation

OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...

The Iceberg Waiting for Your Health Care Data

The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...

New paradigm in data sharing and analysis?

A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient...

SPM loves Flip The Clinic – we’re an “ally”

The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don’t you love the logo? Turning the clinic on its ear?) It’s utterly engaging and empowering...

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