by e-Patient Dave | Sep 5, 2014
I’m giving a talk in Vermont next week, to health IT workers, and in talking with the organizers we realized it would be great to give them a vision of WHY we’re doing this – some true stories of where patients benefitted from seeing the data in...
by e-Patient Dave | Aug 1, 2014
We’ve often written here about the OpenNotes study (here’s a site search), which documented that when patients can see what their clinicians wrote, the sky doesn’t fall; instead, all kinds of good things happen. This is game-changing, even...
by Marilyn Mann | Jul 28, 2014
Preface by e-Patient Dave: We have often written here (see posts) about Shared Decision Making, in which patients are engaged in choosing among treatment options. A key method is to give patients a “decision aid” (DA) – a document or video that...
by Susannah Fox | Jul 23, 2014
At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Meredith Gould and me about the power and pitfalls of people sharing their health experiences online. We are “flipping” the panel by sharing...
by e-Patient Dave | Jul 18, 2014
I know many of our readers already saw this, but, from her personal blog: In one way, I’m sad to see that her work at Pew is over. In her 14 years there, time after time her work made clear what was actually happening as people use the internet in pursuing...
by Casey Quinlan | Jul 2, 2014
Several SPM members were in attendance at the recent SIIPC14 conference at Dartmouth, where the ongoing work on healthcare system transformation has been the source of much great content on e-patients.net over the years. Casey Quinlan – yes, yours truly...
by Michael Millenson | Jun 16, 2014
The founders of SPM were saddened this weekend to learn of the death, in a private plane crash, of Richard Rockefeller, longtime friend of “Doc Tom” Ferguson. Rockefeller was credited in Ferguson’s white paper as “a White Paper Advisor.”...
by Casey Quinlan | Apr 8, 2014
This post was originally a comment by SPM member Jeffrey Harris on our C-ME post from April 3, 2014. Jeffrey has a long history as a clinician, a health IT strategist, and as a patient. We thought his commentary deserved its own post. I had the opportunity to moderate...
by Ileana Balcu | Apr 3, 2014
By Mark Branning and Brad Tritle Mark Branning is Principal at mdb Healthcare IT Solutions, Adjunct Professor at National University, a member of the HIMSS Connected Patient Committee and co-chair of the Connected Patient Community. Mr. Branning has spent 33 years...
by e-Patient Dave | Mar 26, 2014
It’s five years since the ARRA/HITECH legislation was passed that pretty much mandates that American medicine has to computerize. Policies created since then have been enormously effective at moving adoption forward. We still need vast improvements of the user...
by e-Patient Dave | Mar 26, 2014
Last week SPM member Erin Moore (see her previous posts) handled an opportunity in Washington really effectively, and she got heard. Here’s a cross-post of her news, with permission, from her blog 66 Roses. ______________ Last week I traveled to Washington, DC...
by e-Patient Dave | Mar 25, 2014
Five years ago last week, I posted this. A lot has changed since then. Next week I’ll be re-posting what happened next, back then. The subject is still just as valid, so do think about it. Here’s a “reprint”: _________________ I want you to...
by Nancy Finn | Mar 23, 2014
Approximately 98 % of the world’s population are now owners of cellphones, including many adults in remote, hard to reach locations. This proliferation of mobile devices has the potential to improve our ability to diagnose and track disease; to tackle and...
by Casey Quinlan | Mar 11, 2014
Since HIMSS14, there’s been a robust discussion on the SPM listserv about the “business of IT” in healthcare. There were a number of our number present in Orlando for the HIMSS conference, with some of them appearing on the platform. The conversation...
by Susannah Fox | Feb 28, 2014
A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and...
by e-Patient Dave | Feb 25, 2014
Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University’s Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post...
by e-Patient Dave | Feb 11, 2014
Edited an hour later – I had the wrong French speaking e-patient! On Facebook today Christine Bienvenu @TinaBurger posted this news on my timeline: … with the help of a Swiss colleague who works at the Geneva University Hospitals we were able to get the...
by Casey Quinlan | Feb 3, 2014
For e-patients and others who list themselves on Texas Medical Institute of Technology’s SpeakerLink, this very meaty post by Society of Hospital Medicine founder and world-renowned leader of the hospitalist movement Dr. Bob Wachter is required reading. After...
by e-Patient Dave | Jan 30, 2014
Prolog by e-Patient Dave: “Patients Included” was created by Lucien Engelen in the Netherlands for his initiative to have patients speak at all medical events. We in the patient community are taking it everywhere we can. But sometimes – as in this...
by e-Patient Dave | Jan 25, 2014
Here’s a new “must read” for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my...
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