by e-Patient Dave | Jan 21, 2014
For U.S. residents – I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challenge for shopping...
by Ileana Balcu | Jan 14, 2014
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused...
by e-Patient Dave | Jan 13, 2014
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One of the best social media patient figures I met, long ago, was...
by John M. Grohol, Psy.D. | Dec 19, 2013
Go ahead and type in virtually any health or mental health condition into Google. Heck, even try a popular medication or two. Time and time again, you’ll notice a reliable trend — 2 or 3 of the top 10 search results are nearly always going to be WebMD. But...
by Ileana Balcu | Dec 3, 2013
Radiation oncologist Matthew Katz is a lifetime member of SPM who blogs regularly for the American Society of Clinical Oncology and Mayo Clinic Social Media Health Network. In this guest post he offers his view of 23andMe, the personal genomics service that’s in...
by Ileana Balcu | Nov 13, 2013
Below is a guest post by Suzanne Mintz, founder Family Caregiver Advocacy about a summit where patients and caregivers were an integral part of the healthcare redesign process. More and more you will see us featuring meetings and conferences that include patients and...
by e-Patient Dave | Nov 8, 2013
Latest update below: 7:39 a.m. ET On my personal site I’m blogging about the second annual Patients In Power conference happening today and tomorrow in Athens, Greece, organized by SPM member Kathi Apostolidis. 7:39 a.m. ET – The European Charter of...
by e-Patient Dave | Oct 30, 2013
Healthcare IT News is one of the most important – if not the most important – health IT publications. With readership of 54,000, it’s seen by a lot of important “eyeballs,” as they say in marketing. And in this time of critical change, as...
by e-Patient Dave | Sep 29, 2013
At the extraordinary Stanford Medicine X conference I connected with SPM member Leslie Kernisan (Twitter @GeriTechBlog), a geriatrician who’s deeply interested in and committed to enabling elders and caregivers through patient and family engagement. We recorded...
by e-Patient Dave | Sep 6, 2013
Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when...
by John M. Grohol, Psy.D. | Aug 27, 2013
A few months ago, I complained about the layout of one of my doctor’s offices. There’s a rough layout drawing of the office waiting area to the side there. I’m standing just in front of the number 1, while people are sitting along the wall behind me....
by Alicia Staley | Aug 25, 2013
SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged...
by e-Patient Dave | Aug 6, 2013
One of the most-quoted eye-opening quotes in “Doc Tom” Ferguson’s e-Patient White Paper is this: As Donald Lindberg, director of the National Library of Medicine, explains, “If I read and memorized two medical journal articles every night, by the end...
by Susannah Fox | Jul 19, 2013
Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...
by e-Patient Dave | Jul 13, 2013
In medicine, to achieve the best you need the best information. So an essential question is, who gets to say what’s best? That question took a sharp turn this week with the news that Medpedia is dead. Medical librarian Laika Spoetnik has a strong post on the...
by e-Patient Dave | Jun 17, 2013
Last year during TEDMED 2012, in “The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data, we covered the vitally important news that a lot of medical research has gone missing, leading to a severely corrupted foundation for evidence-based...
by e-Patient Dave | Jun 3, 2013
Updated 6/4 in response to Tony’s comment, described below. I’m speaking today at the fifth annual Patient & Family Centered Care conference, hosted by PFCC Partners in Long Beach, California. (They’re not related to the similarly named IPFCC.)...
by Susannah Fox | May 2, 2013
Rebecka Sexton of the Center For Innovation at the Carilion Clinic in Roanoke, VA, emailed a great question and I’d like to share it more widely: We are working on a project here at Carilion on chronic diseases related to Population Health Management related to...
by John M. Grohol, Psy.D. | Apr 22, 2013
Imagine a black box. You can feed all sorts of information and data into it all the live long day. But the amount of data you can get out of it is limited. It just stares back at you with its blank, neutral sides. It can tell you things like where it was manufactured,...
by e-Patient Dave | Apr 14, 2013
This morning on Facebook, an SPM member (who were you??) pointed out that it was seven years ago today that “Doc Tom” Ferguson, the visionary who foresaw the e-patient movement, passed away unexpectedly while being treated for multiple myeloma. Click the...
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